Symptom Saturday is ME Research UK’s ongoing series dedicated to exploring core and additional symptoms of ME/CFS one by one, helping to further understanding of this profoundly debilitating disease. Each symptom is explored over two weeks, covering relevant research, clinical guidelines, lived experiences, and management strategies, and including key comorbidities. To help others understand the everyday realities of ME/CFS, we also run a survey for each symptom and share the profound insights gleaned.
You can keep up to date with the series by keeping an eye on this page.
Overview articles
Core symptoms
ME/CFS core symptoms: Research insights
Experience and impact of ME/CFS core symptoms
Detailed articles
To help you navigate these articles, we have provided a navigation key below.
Core symptoms:
Post-exertional malaise (PEM)
Post-exertional malaise in ME/CFS
The experience and impact of post-exertional malaise in ME/CFS
Cognitive dysfunction (brain fog)
Cognitive dysfunction in ME/CFS
The experience and impact of cognitive dysfunction in ME/CFS
Sleep dysfunction
The experience and impact of sleep dysfunction in ME/CFS
Fatigue
The experience and impact of fatigue in ME/CFS
Surveys
ME Research UK wants to present its work and the realities of ME/CFS in ways that are relatable to supporters. The lived experiences of those affected convey the reality of the disease in the most direct way possible. We are collecting anonymous quotes from individuals with confirmed or suspected ME/CFS about various symptoms to be used at our discretion online, in print, and for internal organisational education.
Current survey
[to be confirmed]
Previous surveys
Post-exertional malaise (PEM) survey
Cognitive dysfunction (brain fog) survey
Note: Whilst your responses are incredibly valuable, please do not feel obliged to participate. There will be a short survey for each symptom in the series, but feel free to opt into the ones that are relevant or manageable. Please prioritise your health and pacing – skip any survey if needed.
Each survey will stay open for an extended period for those who want to participate but can’t at present.
