What is your experience of post-exertional malaise (PEM)?
ME Research UK wants to present its work and the realities of ME/CFS in ways that are relatable to supporters. The following survey focuses specifically on post-exertional malaise (PEM) – the cardinal feature of ME/CFS.
The lived experiences of those affected convey the reality of the disease in the most direct way possible. We are collecting anonymous quotes from individuals with confirmed or suspected ME/CFS on various core symptoms to be used at our discretion online, in print, and for internal organisational education.
Privacy & Confidentiality Notice
Anonymous Collection: We will not have access to your email addresses via this survey. Please do not include personally identifiable information (PII) such as your name, email, or other contact details in your survey responses.
Data Handling: We will only store responses submitted anonymously via this official survey link (not responses left in social media comments).
Consent to Publication: By filling out the survey you are consenting to anonymous quotes being used publicly by ME Research UK (online and in print) and internally for educational purposes. Wording may be lightly edited for clarity, but original context and meaning will be preserved. Please do not proceed if you do not wish to consent. Note: This survey is intended for participants aged 18 and older. However, parents and legal guardians are warmly invited to fill this out on behalf of someone younger than 18 (if explicit permission is given).
Click button below (or use link at bottom of page). Please feel free to complete survey at your own pace, answer in as few words as you wish, and to skip optional questions.
PEM is the cardinal feature of ME/CFS
This survey is part of the Symptom Saturday series – PEM edition
