Mr Roger Jefcoate CBE DL, Founding Patron
Central to the founding of the charity, Roger gives nationwide help to severely disabled people who need adapted computers for educational needs or community work. He is also co-founder of the National Association of Toy and Leisure Libraries, and Canine Partners, and founder of the AIDIS Trust, the Disability Aid Fund and the Mobility Trust. Roger is a Liveryman of the Drapers’ Company, and in 1998 was made CBE for services to disabled people.
The Countess of Mar, Patron
The Countess of Mar was one of the 92 elected hereditary peers in the House of Lords until her retirement in 2020. An indefatigable campaigner against ignorance and injustice, she has a long-standing interest in ME and related illnesses, and is a stout advocate of the need for research and support.
Dr Vance Spence, Honorary President
Vance was instrumental in the founding and launching of ME Research UK. Formerly a Principal Clinical Scientist, he is presently an Honorary Senior Research Fellow at the University of Dundee.
Jonathan Davies, Chair and Trustee
A Chartered Accountant, Jonathan is a self-employed consultant and a member of a family affected by severe ME.
Sue Waddle, Vice-Chair and Trustee
Sue has a background in education and is parent of a child, now an adult, severely affected by ME for the past fifteen years. She undertakes voluntary work as a Magistrate.
Jan McKendrick, Secretary and Trustee
Holding both an MSc in Medical Statistics and a Postgraduate Diploma in Health Economics, Jan is a director of a consulting company and a member of a family affected by ME.
Ed Dunkerley, Trustee
Ed is the co-founder & Technical Director of an Internet Marketing Company based in Newport-on-Tay. Ed’s family has been affected by ME.
Prof Faisel Khan, Trustee
Faisel holds a PhD in Vascular Physiology and is Professor of Cardiovascular Sciences at the University of Dundee and Honorary Clinical Scientist with NHS Tayside.
Lesley Carr, Trustee
Lesley enjoyed a career in HR and Management Development across a variety of sectors and has combined this with voluntary and Trustee work. She has a daughter with ME.
Dr Eleanor Roberts, Trustee
Eleanor has a background in biomedical research, including a PhD in HIV neuropathology, and has built a successful career as a science writer. As someone living with ME, she also brings that insight and understanding of the illness.
Dr David Newton, Research and Communications Director
David has a PhD in Vascular Physiology, and has previously worked in academic biomedical research and as a freelance medical writer.