COVID-19 – should we expect an increase in ME/CFS cases?

Posted on 7 Jul 2020

A recent review of past infectious epidemics suggests that a subgroup of COVID-19 survivors may suffer from chronic post-viral complications, including ME/CFS. There is still much we do not know about the novel coronavirus, COVID-19, but it is becoming clear that many survivors of the initial infection are now reporting longer term, post-viral complications, including fatigue, muscle pain and sore throat. Many people experience post-viral...

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Hemin protects against CFS-like symptoms in mice

Posted on 24 Jun 2020

Porphyria therapy may have potential as a treatment in ME/CFS Derived from red blood cells, hemin is a drug sometimes used to treat the symptoms of porphyria, such as pain and increased heart rate. Researchers from India wondered whether hemin might be of some benefit in ME/CFS, and recently published the results of a study looking at its effects in mice with CFS-like symptoms. Read the abstract by Thakur and colleagues in Neurotoxicity...

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DecodeME – the largest ever ME/CFS DNA study

Posted on 23 Jun 2020

A collaboration of researchers, patients and advocates today announced £3.2 million in funding for what will be the largest ever study looking at DNA changes in people with ME/CFS. The DecodeME study is being led by Prof. Chris Ponting of the MRC Human Genetics Unit at the University of Edinburgh, and jointly funded by the Medical Research Council and the National Institute for Health Research. The participation of people with ME/CFS across the...

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European Parliament Resolution

Posted on 19 Jun 2020

In a historic vote on 17th June 2020 the European Parliament called for additional EU funding for research into ME/CFS and the prioritisation of projects focused specifically on biomedical research. The Resolution was carried by 676 votes in favour, 4 against and 8 abstentions. However, Resolutions are non-binding and how the Commission and the 27 Member States of the EU react reacts will be the acid test. The matter now pass to the Commission...

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European Parliamentary Debate on ME funding

Posted on 10 Jun 2020

Today, Wednesday 10 June, is exactly one week before a vote in the European Parliament on the first-ever resolution on ME/CFS. ME Research UK hopes that this historic moment will lead to a long-term commitment to invest in biomedical ME research. It is striking that €80 billion of Research and Innovation funding was made available as part of the Horizon2020 programme from 2014 to 2020 but major biomedical research funding into ME/CFS was...

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The experience of living with ME/CFS

Posted on 4 Jun 2020

ME Research UK is delighted to announce that we have approved funding to Prof. Julia Newton and colleagues at Newcastle University for a new research project which aims to provide a better understanding of how to involve people with severe and very severe ME/CFS in research. Read more here

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