NICE have amended their initial notification of a meeting with stakeholders to discuss the ‘pausing’ of the ME/CFS guideline’s publication.
The following is the updated release from NICE’s website –
Following the pause to the publication of the guideline NICE has today, 27 August 2021, announced that it is to hold a roundtable event to better understand the issues raised and determine how it can gain support for the guideline to ensure effective implementation.
The meeting, which will be held in October 2021, will have an independent chair and will include representatives from patient organisations and charities, relevant professional societies and from NHS England and NHS Improvement, NICE and the guideline committee.
Paul Chrisp, director for the Centre for Guidelines at NICE, said: “Our aim throughout this process has been to use the best available evidence as well as the lived experience of people with ME/CFS to address and resolve the continuing debate about the best approach to treating people living with this debilitating condition. We remain optimistic that we can reach a way forward to publish a guideline that will have the support of people living with ME/CFS, the people who care for them and the professionals who treat them.”
Updated: 10th September, to change the month of the meeting from September to October.
A NICE spokesperson said: “In order for the meeting to be as effective as possible it is important to fully understand the issue and concerns that all groups attending the meeting wish to raise. We also recognise the difficulty that holding the meeting at short notice created for some attendees who would have been unable to make the original date.”