News

Priority Setting Partnership – Final Stage

The ME/CFS Priority Setting Partnership enters its final stage with workshops to decide the top ten ME/CFS research priorities. The aim of the workshops is to agree the top ten questions for research into ME/CFS which matter most to people living with ME/CFS, their carers, supporters, and the healthcare professionals who work with them. It is envisaged that these questions will add a new perspective to the research agenda for ME/CFS. The process will be facilitated by The James Lind Alliance.

Over the last year people with ME/CFS, carers, supporters, and health care professionals were asked for their views on ME/CFS questions they wanted answering by research. Over 5,300 ideas were submitted. These questions were reviewed, collated and summarised, into a long list of 59 questions.  These 59 questions were prioritised by over 2,000 people who engaged in a second survey, giving a shortlist of about 15 questions which will go to the final workshops.

The Priority Setting Partnership wishes to recruit approximately 30 people who have lived experience of ME/CFS, carers and supporters including family, and healthcare professionals working in this field. This includes people with all severities of ME/CFS. The workshops will take place on Zoom:

  • Saturday 5th March 1.00pm – 2.30pm
  • Thursday 10th March 5.30pm -7.00pm
  • Friday 18th March 2.00pm – 4.00pm

To take part – complete an expression of interest form below by midday Tuesday 11th January 2022.

Download the form for email and postal applications

You can also download the form by clicking here.

Online, email or hard copy applications will be accepted. The postal service is in high demand right now and some mail is delayed so you might choose to try and submit your form online if at all possible.

You can email your form to questions@psp-me.co.uk or you can return it via post but it must arrive before the closing date.  This is a freepost address, so no need for a stamp:

FREEPOST Plus RTJR-TREB-AXGY
42 Temple Street
Keynsham BS31 1EH