Commons Debate 24 January 2019

Posted on 25 Jan 2019

The rather foreshortened debate began eventually at 3.30pm and closed at 5pm on 24 January 2019 with the Motion being passed without a Division and without amendment. Regrettably, pressure of time meant that MPs were asked to limit their speeches progressively from 4 to 3 and then to 2 minutes apiece and so much useful comment was probably left unsaid and the opportunity to make specific points lost. Nevertheless, 27 backbench MPs had the...

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Breakthrough Autumn 2018

Posted on 24 Jan 2019

The electronic version of our Autumn 2018 Breakthrough magazine is now online. Download a pdf or read it online. The contents include ME Research UK-funded research on immune cell infiltration of the brain and muscle function abnormalities in ME/CFS; short items on Sir Alex Ferguson, the CMRC conference, Forward – ME 10th anniversary and our new CEO; and many shorter ‘research bites’. The magazine is free to patients and their...

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Background to House of Commons Debate on 24 January 2019

Posted on 22 Jan 2019

On 30 October 2018, MPs Carol Monaghan, Nicky Morgan, Kelvin Hopkins and Stephen Pound appeared before the Backbench Business Committee seeking time for a UK House of Commons debate on ME. Their petition was supported by more than 30 MPs and the Backbench Business Committee allocated time, on 24 January 2019, for a full debate in the Commons Chamber on a substantive Motion, namely: That this House calls on the Government to provide increased...

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Kiltwalk 2019

Posted on 16 Jan 2019

Kiltwalk is a unique charity that enables walkers to raise money for any Scottish charity and, as ME Research UK is based in Perth, we are eligible to participate but we need your help. Kiltwalk Glasgow 2018 – be part of the fun in 2019 for ME Research UK Thanks to Sir Tom Hunter and the Hunter Foundation every pound raised gains a top-up of 40p. That means for every £100 , we will receive £140 in total which can be used to support of...

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CBT and GET Patient Survey

Posted on 10 Jan 2019

Forward ME has launched a survey, having been asked by the National Institute of Health and Care Excellence (NICE) to gather evidence and experiences of Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT). NICE has recently started the process of reviewing (and ultimately replacing) the guideline on M.E./CFS Diagnosis and Management.  As part of this process Forward ME welcomes the opportunity to ensure that the views of...

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Forward-ME Group Minutes – 21st November 2018

Posted on 8 Jan 2019

Minutes of the Meeting held in Residence 1, House of Lords, Wednesday 21 November 2018, 2.00 pm Introductions and Apologies. The Chairman introduced new members Suzie Henson-Amphlett, Sam Bromiley and Esperanza Moreno. Apologies had been received  from Sue Waddle (MERUK), Anita Williams (TYMES), Janice Kent (reMEmber), Tony Crouch (25% Group), Dr Nigel Speight, Nina Muirhead, Philip Gowan and Clare Ogden (AFME). Parliamentary...

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