Updated MEGA Website

Posted on 30 Mar 2017

The ME/CFS Epidemiology and Genomics Alliance (MEGA) has updated its website to prove a new blog on the topic ‘Our latest funding application and Patient Advisory Group update’ and additional Q&As have been posted. MEGA was established following a Grand Challenge workshop convened by the UK ME/CFS Research Collaborative (CMRC) in May 2016 (read the report), and was launched at 2016 CMRC conference in Newcastle. A full report on...

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Forward ME Group Minutes

Posted on 7 Mar 2017

Minutes of the Meeting held in the Television Interview Room, House of Lords, Tuesday 7 February 2017, 2pm Present: Countess of Mar (Chairman); Janice and Bill Kent (reMEmber); Dr Charles Shepherd (ME Association); Clare Ogden (AFME) and Tony Crouch (representing the 25% Group and TYMES Trust). Apologies had been received from  Sue Waddle (ME Research UK), Christine Harrison (BRAME), Hannah Clifton (ME Trust), Jane Colby (Thymes Trust) and Cath...

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CMRC Conference 2016

Posted on 1 Mar 2017

The 92-page official report of the third UK ME/CFS Research Collaborative (CMRC) scientific conference has been finalised, and can be downloaded as a pdf from Action for ME’s website. The conference was held in Newcastle on 28th and 29th September 2016, and was attended by more than 90 scientists and people affected by ME/CFS. ME Research UK was represented by our Chairman, Dr Vance Spence and Vice-Chair, Mrs Sue Waddell at the event. The...

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Shifting focus

Posted on 13 Feb 2017

Problems with vision are relatively common among people with ME/CFS, the majority of whom report symptoms such as hypersensitivity to light, difficulties focusing, and dry eyes. But despite their significant impact on quality of life, there is still a lack of scientific research into these symptoms, and they are not included in any clinical and diagnostic guidelines for ME/CFS. Fortunately, scientists such as Dr Claire Hutchinson of the...

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Is mitochondrial function abnormal?

Posted on 12 Jan 2017

Mitochondria are often referred to as the power plants of the body because they are responsible for generating nearly all the energy needed to support life. These kidney bean-shaped structures are found in most cells and are made up of different compartments, each with a specific role related to the metabolism of the cell they inhabit. One of these roles is the generation of adenosine triphosphate (ATP), a molecule that is used to transport...

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Forward ME Group Minutes

Posted on 7 Jan 2017

Minutes of the Meeting held in the Television Interview Room, House of Lords, Wednesday 7 December 2016, 2.00 pm Present: Countess of Mar (Chairman); Janice and Bill Kent (reMEmber); Hannah Clifton (ME Trust); Jane Colby (TYMES Trust); Christine Harrison (BRAME); Clare Ogden (AFME); Dr Charles Shepherd (ME Association) and Sue Waddle (ME Research UK). Apologies had been received from Sonya Chowdhury (AFME), Dr Paul Worthley (ME Trust) and Cath...

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