NICE ME/CFS Guideline Committee – ME Research UK’s Comment

Posted on 29 Oct 2018

ME Research UK joined other charities and those affected by ME/CFS in welcoming the long-awaited review of the NICE Guideline on ME/CFS.  Given the concerns expressed by many about the scope and content of the current Guideline, this review is vitally important and ME Research UK, as a stakeholder, has submitted its views to NICE during its consultation period. We agree that it is important to listen and understand the views of a range of...

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Forward-ME Group 10th Anniversay Lunch

Posted on 26 Oct 2018

Members of the Forward – ME Group marked the 10th Anniversary of its foundation at a lunch at the House of Lords on 23rd October 2018. Those attended wished to thank the founder and moving force behind the Group for all her efforts on behalf of those affected by ME/CFS. The dedication and work of the Countess of Mar in creating and leading the Group cannot be overstated and, with the end of the All Party Parliamentary Group on ME/CFS,...

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Forward-ME Group Minutes – 17th July 2018

Posted on 9 Oct 2018

Minutes of Meeting held in Residence 2, House of Lords, Tuesday 17 July 2018, 2.00 pm Present: Countess of Mar (Chairman): Carol Monaghan MP; Bill & Janice Kent (reMEmber); Tony Crouch (25% Group); Christine Harrison (BRAME); Dr Charles Shepherd (ME Association); and Dr Nina Muirhead. Apologies had been received from Hannah Clifton ( ME Trust), Sarah Reed (ME Action), Jane Colby and Anita Williams (TYMES Trust), Sue Waddle and Jonathan...

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Introducing our new CEO – Simon Phillips

Posted on 10 Sep 2018

ME Research UK Board of Charity Trustees is delighted to announce the appointment of Simon Phillips as Chief Executive Officer (CEO) of the charity. Simon comes to us with a wealth of charity sector experience that complements our existing team.  We are all looking forward to working with him and the team to build on our position as the UK’s leading charity funding biomedical research into ME. Simon adds, “I am extremely proud to have been...

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CBT & GET – Parliamentary Question – Updated

Posted on 10 Jul 2018

The Countess of Mar, Chair of the Forward-ME Group and Patron of ME Research UK has raised a number of points with the Department of Health and Social Care concerning how those affected by ME/CFS can report adverse effects experienced due to participation in Graded Exercise Therapy and/or Cognative Behavioural Therapy (GET and CBT). These two ‘treatments’ are recommended by The National Institute for Health and Care Excellence...

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Forward-ME Group Minutes – 1 May 2018

Posted on 4 Jun 2018

Minutes of the Meeting held in Residence 1, House of Lords, Tuesday 1 May 2018, 2.00 pm Present: Countess of Mar (Chairman); Carol Monaghan MP; Amy Brett (PA to Ms Monaghan); Bill Kent (reMEmber);  Jane Colby & Anita Williams (TYMES Trust); Tony Crouch (25% Group); Christine Harrison (Brame); Clare Ogden (AFME); Dr Charles Shepherd (ME Association); Dr Nina Muirhead; Sue Waddle (ME Research UK); and Alexandra Heumber (Head of International...

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