ME Research UK and the UK ME/CFS Research Collaborative

Posted on 19 May 2017

ME Research UK has taken the decision to withdraw its membership from the UK CFS/ME Research Collaborative with immediate effect. ME Research UK exists to fund biomedical research into ME/CFS, to find its cause, to develop effective treatments and ultimately to discover a cure. In 17 years, it has funded 45 specific research projects in the UK and overseas, more than any other single organisation in the world outside the American continent. The...

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2017 CMRC Conference Registration Opens

Posted on 25 Apr 2017

Registration is now open for the Fourth Annual CMRC Conference which will be held on Wednesday 13 and Thursday 14 September 2017 at Future Inns Cabot Circus, Bond St South, Bristol. The purpose of the conference is to increase collaboration between researchers in the CFS/ME field and with those from other research/illness areas. Although the full programme has yet to be announced, the provisional one is now available. Experts in neurovirology,...

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Forward ME Group Minutes

Posted on 25 Apr 2017

Minutes of the Meeting held in the Television Interview Room, House of Lords, Tuesday 14 March 2017, 2.00 pm Present : Countess of Mar (Chairman); Janice & Bill Kent (reMEmber); Hannah Clifton & Gareth Tucker (ME Trust); Jane Colby (TYMES Trust); Tony Crouch (representing 25% Group and TYMES Trust); Clare Ogden (Action for ME); Dr Charles Shepherd (ME Association); Dr Nigel Speight; and Sue Waddle (ME Research UK) In Attendance  : Ms...

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Experiences of post-infectious fatigue syndrome

Posted on 17 Apr 2017

As scientists, it is very easy for us to focus on the biological details of an illness like ME/CFS and forget about the patients themselves. Hence the value of studies such as that by Eva Stormorken at the University of Oslo and Prof. Leonard Jason at DePaul University in Chicago, who in 2015 looked at the experiences of patients with post-infectious fatigue syndrome (PIFS). PIFS can be considered a subtype of ME/CFS where symptoms develop...

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CMRC Minutes March 2017

Posted on 10 Apr 2017

The UK ME/CFS Research Collaborative (CMRC) held a board meeting on 21st March 2017 to discuss relevant issues, such as plans for an autumn 2017 conference, MEGA study and research matters. The draft Minutes are provided below. Launched in 2013 (see our overview of the event), the aim of the CMRC is to promote the highest quality of basic and applied evidenced-based and peer reviewed research into ME/CFS by bringing together national agencies,...

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Signature Move

Posted on 5 Apr 2017

We are delighted to announce that ME Research UK has awarded a new research grant to Prof. David Patrick at the University of British Columbia. As a new randomised trial in Norway investigates the potential of rituximab as a treatment for ME/CFS, Prof. Patrick and his team plan to use samples from that trial in developing an immunosignature to identify those patients most likely to benefit from the drug. This is important because rituximab is...

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