Forward-ME Group Letter Forward-ME Group Chair, The Countess of Mar, has written on behalf of the members of the Group to the Chief Executive of the Science Media Centre asking for the SMC “to retract and replace your factsheet on CFS/ME, published on 21 March 2018”. The letter continues that the factsheet, entitled “CFS/ME – The illness and the controversy” “……. includes numerous inaccuracies and distortions; it denigrates patients and some...

The Forward-ME Group was addressed by Diane O’Leary, PhD. Visiting Fellow in Bioethics and Philosophy, Fondation Brocher, Hermance,Switzerland and Visiting Scholar in Neuroethics, Pellegrino Center for Clinical Bioethics, Georgetown University Medical Center, Washington DC. at its 28th March 2018 meeting. Dr O’Leary highlighted the forthcoming update of the World Health Organisation’s ‘International Classification of...

Negative trial results stall the search for an immunosignature Last year, we reported on a newly funded study aimed at developing a biomarker to help predict patients who will respond to treatment with rituximab. Unfortunately, this study will not now be going ahead. Rituximab is an antibody that attacks B cells and has been used to treat some cancers and autoimmune disorders. Following promising results in patients with ME/CFS, a randomised,...

Minutes of the meeting held in Residence 1, House of Lords, Wednesday 7 February 2018 starting 2pm Present: Countess of Mar (Chairman); Dr Charles Shepherd (ME Association); Dr William Weir; Bill Kent (reMEmber); Tony Crouch (25% Group and Tymes Trust); Sue Waddle and Jonathan Davies (ME Research UK); and Christine Harrison (BRAME). Apologies had been received from Janice Kent (reMEmber); Cath Ross (25% Group): Tanya Harrison (BRAME): Jane...

Prof. Jo Nijs and colleagues in Brussels have recently published results from an ME Research UK-funded project looking at cerebral blood flow and heart rate variability, and whether they relate to pain following exercise in ME/CFS. Read more here

Minutes of the meeting held  in Residence 2, House of Lords, Wednesday 10 January 2018 starting 2pm Present: Countess of Mar (Chairman); Dr Charles Shepherd (ME Association); Bill Kent (reMEmber); Tony Crouch (representing 25% Group); Jane Colby and Anita Williams (TYMES); Clare Ogden (AFME); Hannah Clifton and Dr Paul Worthley (ME Trust); and Dr Willy Weir. Apologies had been received from Sue Waddle (MERUK), Christine Harrison (BRAME) and...