Dialogues for a Neglected Illness

The videos below are from ‘Dialogues for a Neglected Illness’, a project supported by an award from the Wellcome Public Engagement Fund (2018–21). It is produced by Natalie Boulton with cameraman and editor Josh Biggs. The project addresses different aspects of ME/CFS, and includes interviews with and input from doctors, researchers, patients, carers and advocates.

The project consists of a website – dialogues-mecfs.co.uk – where the videos are presented alongside supporting information with links to further resources.

As with all external content provided on our website, the views given are those of the individuals involved, and are not necessarily endorsed by ME Research UK. Please see our Terms and Conditions.

The Tangled Story of ME/CFS: Controversy, Denigration and Ignorance
Prologue (and transcript)
An Introduction to ME/CFS
Understanding Post-Exertional Malaise
A Quick Guide to Post-Exertional Malaise
Understanding Graded Exercise Therapy for ME/CFS, Part 1
Understanding Graded Exercise Therapy for ME/CFS, Part 2: the PACE Trial
Severe & Very Severe ME/CFS
Symptoms and Management of Very Severe ME/CFS
Hospital Admission: Issues and Alternatives for Severely Ill ME/CFS Patients
Patients’ Accounts of Symptoms of ME/CFS or ME: 1. Reduced Function
Patients’ Accounts of Symptoms of ME/CFS or ME: 2. How does the disease start?
Patients’ Accounts of Symptoms of ME/CFS or ME: 3. Post-exertional Malaise
Patients’ Accounts of Symptoms of ME/CFS or ME: 4. Cognitive Impairment
Patients’ Accounts of Symptoms of ME/CFS or ME: 5. Sleep Dysfunction
Patients’ Accounts of Symptoms of ME/CFS or ME: 6. Orthostatic Intolerance
Patients’ Accounts of Symptoms of ME/CFS or ME: 7. Pain
Patients’ Accounts of Symptoms of ME/CFS or ME: 8. Hypersensitivity
Activity Management – Pacing