Priority Setting Partnership – Deadline for Views

The ME/CFS Priority Setting Partnership (PSP) is giving the public the opportunity to define the top ten priorities for future ME/CFS research, but time is running out.

The deadline for submissions is 5pm Monday 13th December 2021

In partnership with the James Lind Alliance, the ME/CFS Priority Setting Partnership has produced a survey asking those taking part to choose between 59 research questions.

These questions are based on over 5300 ideas submitted by people with ME/CFS, their carers and clinicians in their first survey. Now it’s time to prioritise the top ten.

Jonathan Davies, Chair of ME Research UK, stated “As a major funder of ME/CFS research, ME Research UK looks forward to publication of the results of the PSP. Both our Science Committee and our Board will look carefully at the outcome.”

There are three ways to take part:  

  • ONLINE:  
  • PAPER:
    If you can’t participate online, then the PSP can send you a paper survey. Phone or write to the ME/CFS PSP with your name, address and phone number.  
  • BY PHONE:  
    • If you need to complete the survey by phone, please call Helen at the 25% ME Group on 0739 240 3591  
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