NICE have published both a more detailed agenda and a list of discussion points for the 18th October roundtable meeting which will help map the future of the paused ME/CFS guideline. The Agenda is as follows – Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and managementRoundtable discussion – Agenda 18th October 2021 – 14:00-17:00Thames Room, […]
As NICE’s ‘pause’ in publishing the replacement guideline on the diagnosis and management of ME/CFS approaches 2 month in duration, Baroness Thornton raised the matter in the House of Lords on 12 October 2021. To ask Her Majesty’s Government, further to the decision to delay the planned new guidelines on the diagnosis and management of […]
Forward ME and our members want to thank the many people with ME, Doctors and researchers who have contacted us to share concerns and frustrations around the delays to publication of the new NICE guidelines on ME. Forward-ME has been invited to the round table, and the following organisations will also attend individually: ME Association, […]
Ahead of the roundtable meeting on 18 October, NICE has today (12 October 2021) released details of the agenda and how the meeting will be run. 12 October 2021 Publication of the NICE guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS) was paused after several professional organisations contacted NICE […]
Given all the delays concerning publication of the NICE guideline it is useful to recall key staging dates in order to give context. With acknowledgement to NICE – we reproduce their timeline leading to the ‘non-publication’ of the new guideline on the diagnosis and management of ME/CFS. Additional items added by ME Research UK are […]
NICE has announced the date of the roundtable discussion with stakeholders neccessitated by their decision to ‘pause’ publication of the new ME/CFS guideline which was due to be published on 18th August 2021. The roundtable meeting to discuss the updated guideline on the diagnosis and management of ME/CFS will be held on October 18th in […]
NICE have amended their initial notification of a meeting with stakeholders to discuss the ‘pausing’ of the ME/CFS guideline’s publication. The following is the updated release from NICE’s website – Following the pause to the publication of the guideline NICE has today, 27 August 2021, announced that it is to hold a roundtable event to […]
ME Research UK has joined many members of Forward-ME in adding its signature to a letter to NICE in advance of a round-table meeting following the unprecedented decision by NICE to pause the publication of the new ME/CFS guideline. Dear Professor Leng, The National Institute for Health and Care Excellence (NICE) is charged with creating evidence-based clinical […]
Following upon NICE’s announcement of an independently chaired meeting to discuss progress on publication of the guideline on diagnosis and management of ME/CFS, the Forward-ME group has issued the following statement – Forward-ME have now had a number of direct communications with NICE regarding the delay, in which we have shared the concerns of the […]
Statement received by stakeholders today 27th August 2021 NICE announces next steps for ME/CFS guideline NICE recognises the importance to patients of the updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS) and is keen to move forwards as quickly as possible. Following the pause to the publication of […]
