New tools to assess levels of activity and participation in children and young people with ‘post-acute infection and vaccination syndromes and/or ME/CFS’ developed

A team of researchers, including Uta Behrends who has previously worked on an ME Research UK-funded project, have developed new tools to measure levels of activity and participation in children and young people (CYP)with ‘post-acute infection and vaccination syndromes and/or ME/CFS’. In their paper, the authors state that the development of these tools is essential […]

ME Research UK – e-newsletter March 2026

New funding award: Immune exhaustion in ME/CFS ME Research UK is delighted to have awarded funding to Dr Andrea Polli and Prof. Lode Godderis at Vrije Universiteit Brussel and Katholieke Universiteit Leuven in Belgium for a project investigating immune exhaustion in ME/CFS. Together with PhD student Yanthe Buntinx, the team will explore whether the immune […]

ME/CFS 7 years after Epstein Barr Virus infection — why studies that follow participants over time are important.

To gain a more detailed understanding of the link between Epstein Barr Virus (EBV) — which causes glandular fever, also known as Infectious Mononucleosis or ‘mono’ — and ME/CFS, Professor Leonard Jason and colleagues have published a study that follows a group of college students — a population in which EBV infection is common — over a 7-year period.   The research team concluded that […]

Could diagnostic history act as an indicator for ME/CFS?

Currently, there is no validated diagnostic biomarker for ME/CFS, and the disease is diagnosed based on clinical criteria such as the 2021 NICE guidelines, or the Canadian Consensus Criteria.   The bias and stigma associated with the ME/CFS, alongside limited awareness, gaps in medical knowledge, and a high symptom overlap with other illnesses, leads to delays in accurate diagnosis.   In fact, one study, published in 2021, made the following observation:   “Many people with ME/CFS […]

Podcast episode with Prof. Leonard Jason

Professor Leonard Jason – a researcher and person with ME/CFS – has spoken to Brent Franson, presenter of the podcast Death Clock which is ‘devoted to understanding how transformative life change can add years to your life’. In the episode, Prof. Jason discusses with Franson what ME/CFS is, how it is different to everyday fatigue […]

Heightened antibody responses to herpesviruses in females with ME/CFS

A recent study analysed over 800 blood samples from 40 females with ME/CFS compared to 16 healthy controls. The study primarily examined differences in antibodies to human herpesvirus proteins, and it found that participants with ME/CFS exhibited significantly altered antibody levels (indicating viral reactivation) compared to controls. Study Caveats Important considerations to be noted: Study […]

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