Forward-ME Group statement on roundtable NICE meeting

Forward ME and our members want to thank the many people with ME, Doctors and researchers who have contacted us to share concerns and frustrations around the delays to publication of the new NICE guidelines on ME.

Forward-ME has been invited to the round table, and the following organisations will also attend individually:

ME Association, Action for ME, #MEAction UK, Science for ME, ME Research UK, The 25% ME Group, Tymes Trust, ME Trust.

Preparations for the round table mirror the issues raised by the ME community across social media. The charities are grateful for all the feedback we have received.

The round table is an opportunity to ensure the rigorous work of the NICE guideline committee is understood by care providers.

We are not attending to discuss changes.

All Forward-ME members recognise the significance of the recommendations in the new guideline.

The guideline has been produced and approved in accordance with NICE’s rigorous procedures, and should be published.

We share the frustrations over the delay, and are working to achieve urgent publication.

We look forward to updating the ME community in the days following the round table, and we hope this is accompanied by swift publication.


Stakeholders have been asked to attend a roundtable meeting on Monday 18th October 2021 in order to discuss the’paused‘ publication of the new NICE guideline. ME Research UK will be respresented by our Chair, Jonathan Davies.

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