On 6th November 2023, the Department of Health and Social Care posted the following update –
The purpose of this publication is to provide information about work to develop the Final Delivery Plan on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).
On 9 August 2023, DHSC published its Interim Delivery Plan on ME/CFS, alongside a focused 8-week consultation. A separate 8-week consultation in easy-read format was opened on 4 September 2023.
Both consultations are now closed.
The ME/CFS community responded in force and we are grateful to all of those who used their time and precious energy to provide views. We received over 3,500 responses to both consultations, from individuals with ME/CFS, carers and family members, from professionals working in, and from organisations interested in, ME/CFS.
We know that many of you want to know what the next steps will be.
We will now take some time to consider in detail all of the individual and organisational responses submitted. We will publish a summary of what we have heard in due course. Your responses will then be used to develop the Final ME/CFS Delivery Plan for England, engaging – as before – with a range of stakeholders, including people with lived experience of ME/CFS.
Where respondents live or work in Scotland, Wales or Northern Ireland, we will forward those responses to the relevant devolved governments to inform their future policy developments in this area.