Updated NICE guideline: recommendations for research

While the updated NICE guideline on ME/CFS is focused on the diagnosis and management of the illness, it acknowledges that there is still much to learn about it, and therefore makes some useful recommendations for research. These recommendations largely relate to the effectiveness of diagnostic tests and criteria, and the use of health-outcome measures in […]

Top 10 takeaways from the updated NICE guideline

Today’s publication of the updated NICE guideline on ME/CFS marks a significant step in the acceptance of ME as a physical illness and the recognition of appropriate treatments for people affected by the condition. There are marked changes from the previous version in how people are to be diagnosed and what treatments can be offered. […]

Our response to the updated NICE guideline

Download the new guideline here Read NICE’s official press release here Read Forward-ME’s response here Today’s publication by NICE of its updated ‘Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management’ clinical guideline marks a significant step in both the acceptance of ME as a physical illness and the recognition of appropriate treatment needs of […]

NICE guideline to be published

NICE has announced (20th October 2021) that they will publish the guideline following a meeting of its Guidance Executive next week. The announcement follows the roundtable meeting held earlier on 18th October 2021 involving representatives from a range of patient and professional organisations, to discuss concerns raised about some aspects of the guideline that had […]

NICE guideline Review – timeline

Given all the delays concerning publication of the NICE guideline it is useful to recall key staging dates in order to give context. With acknowledgement to NICE – we reproduce their timeline leading to the ‘non-publication’ of the new guideline on the diagnosis and management of ME/CFS. Additional items added by ME Research UK are […]

NICE guideline Update – Meeting Announced

Statement received by stakeholders today 27th August 2021 NICE announces next steps for ME/CFS guideline NICE recognises the importance to patients of the updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS) and is keen to move forwards as quickly as possible. Following the pause to the publication of […]

Forward-ME Statement on NICE guideline delay

ME CHARITIES BAFFLED BY DELAY TO NICE GUIDELINE Statement on the delay to publication of the NICE Guidelines on diagnosis and management of ME On Behalf of: Forward ME, Action for ME, ME Association, Doctors for ME, and ME Research UK. We are shocked and hugely disappointed to hear that the long-awaited NICE guidelines have […]

NICE Guideline – 11th hour delay

In what must surely be a highly unusual step, NICE this afternoon issued a statement to say that tomorrow’s release of the new ME/CFS guideline, merely hours before its anticipated release. MEDIA STATEMENT NICE pauses publication of updated guideline on diagnosis and management of ME/CFS NICE has today (17 August 2021) taken the decision to […]