The publication of a review into ‘Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis’ by Prof Peter White et al has been covered in the press – most noticeable by ‘The Guardian’ yesterday – with the review’s authors considering that the 2021 NICE […]
RCGP REPORTReport on a meeting held on Thursday 16th June between Forward ME (FME) and the Royal College of General Practitioners (RCGP) to discuss implementation of the new NICE guideline on ME/CFS in primary care. Representing Forward ME Andrew Morris – Chair, Forward-MEJonathan Davies – Chair, ME Research UKDr Charles Shepherd – Trustee and Hon. […]
Due to the fact that the devolved nations in the UK have their own NHS systems, NICE’s Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management guideline does not apply automatically, say in Scotland. Each nation decides on whether and how to implement the NICE guideline in keeping with each nation’s priorities and NHS infrastructure. […]
While the updated NICE guideline on ME/CFS is focused on the diagnosis and management of the illness, it acknowledges that there is still much to learn about it, and therefore makes some useful recommendations for research. These recommendations largely relate to the effectiveness of diagnostic tests and criteria, and the use of health-outcome measures in […]
Today’s publication of the updated NICE guideline on ME/CFS marks a significant step in the acceptance of ME as a physical illness and the recognition of appropriate treatments for people affected by the condition. There are marked changes from the previous version in how people are to be diagnosed and what treatments can be offered. […]
ME Research UK is a member of Forward-ME, an alliance of several UK charities and organisations which aims to provide a unified voice for the ME community. Below is the press statement from Forward-ME in response to the new NICE guideline on ME/CFS, which summarises some of the changes from the previous version. Download the […]
Download the new guideline here Read NICE’s official press release here Read Forward-ME’s response here Today’s publication by NICE of its updated ‘Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management’ clinical guideline marks a significant step in both the acceptance of ME as a physical illness and the recognition of appropriate treatment needs of […]
On Monday, Forward-ME and member charities attended a round table to review the new ‘NICE guideline on ME/CFS’ with representatives from NICE and clinical groups. The meeting followed the Chatham House Rule, meaning that we cannot attribute comments to individuals. This ensured that all groups were able to speak freely. The round table reviewed the […]
NICE has announced (20th October 2021) that they will publish the guideline following a meeting of its Guidance Executive next week. The announcement follows the roundtable meeting held earlier on 18th October 2021 involving representatives from a range of patient and professional organisations, to discuss concerns raised about some aspects of the guideline that had […]
Given all the delays concerning publication of the NICE guideline it is useful to recall key staging dates in order to give context. With acknowledgement to NICE – we reproduce their timeline leading to the ‘non-publication’ of the new guideline on the diagnosis and management of ME/CFS. Additional items added by ME Research UK are […]
