PoTS, NICE and IV fluids

Many people with ME/CFS are also affected by postural orthostatic tachycardia syndrome (PoTS) which is an autonomic nervous system issue – the symptoms (in simple terms) of which being associated with an abnormally high and persistent increase in heart rate shortly after standing upright, therefore treatment are of interest. Rachael Maskell MP submitted a Parlaimentary […]

NICE guideline basis challenged

The publication of a review into ‘Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis’ by  Prof Peter White et al has been covered in the press – most noticeable by ‘The Guardian’ yesterday – with the review’s authors considering that the 2021 NICE […]

NICE guideline implementation in Scotland

Due to the fact that the devolved nations in the UK have their own NHS systems, NICE’s Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management guideline does not apply automatically, say in Scotland. Each nation decides on whether and how to implement the NICE guideline in keeping with each nation’s priorities and NHS infrastructure. […]

NICE roundtable Minutes

NICE has produced Minutes from the roundtable discussion of 18th October which led to the publication of the new guideline ‘Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management’ [NG206]. Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management Roundtable discussion – Minutes 18 October 2021Thames Room, 2nd Floor 2 Redman Place, London, E20 1JQ […]

Updated NICE guideline: recommendations for research

While the updated NICE guideline on ME/CFS is focused on the diagnosis and management of the illness, it acknowledges that there is still much to learn about it, and therefore makes some useful recommendations for research. These recommendations largely relate to the effectiveness of diagnostic tests and criteria, and the use of health-outcome measures in […]

Top 10 takeaways from the updated NICE guideline

Today’s publication of the updated NICE guideline on ME/CFS marks a significant step in the acceptance of ME as a physical illness and the recognition of appropriate treatments for people affected by the condition. There are marked changes from the previous version in how people are to be diagnosed and what treatments can be offered. […]

Verified by MonsterInsights