Considering the prevalence of long COVID 

NB: When considering information concerning groups of people with ME/CFS and those with long COVID, it is important to remember that ME/CFS is a symptom-based clinical diagnosis not a mechanistic one. It is clear there is a high degree of shared pathophysiology between ME/CFS and long COVID, and the two diagnostic labels are not mutually […]

What are the difficulties in arriving at a consensus regarding the prevalence of long COVID? – Part 2

Key points Introduction In this, the second of two articles discussing the difficulties faced when attempting to reach a consensus regarding a prevalence estimate for long COVID (LC), ME Research UK will highlight: Awareness of LC, medical gaslighting, and avoidance of diagnosis due to stigma In the “long COVID status report”, which was published in February 2025 to summarise […]

The prevalence of long COVID – Summary

NB: When considering information concerning groups of people with ME/CFS and those with long COVID, it is important to remember that ME/CFS is a symptom-based clinical diagnosis not a mechanistic one. It is clear there is a high degree of shared pathophysiology between ME/CFS and long COVID, and the two diagnostic labels are not mutually […]

Long COVID Awareness Day 2026

As well as Mother’s Day, yesterday was long COVID Awareness Day. During the early phases of the COVID-19 pandemic, as the term ‘long COVID’ first emerged, Dr Anthony Komaroff raised a crucial question in an article: “Will some people who get COVID-19 subsequently develop ME/CFS?” He further stated, “After all, many people with ME/CFS say […]

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