At ME Research UK we are committed to protecting your privacy. When you interact with us by phone, mail, in person or online, we sometimes receive personal information about you. This page, together with our website terms and conditions, tells you about how we collect, use and store your personal information.

Please read this policy carefully to understand how we collect, use and store your personal data.

If you have any queries about our privacy policy, please contact us at or call us on 01738 451234.

What this policy takes into account

Our privacy policy takes into account several legal instruments, including:

  • the Data Protection Act 1998
  • the Privacy and Electronic Communications (EC Directive) Regulations 2003 as amended by The Privacy and Electronic Communications (EC Directive) (Amendment) Regulations 2011
  • Directive 2009/136/EC of 25 November 2009 (“The European Union Cookie Directive”).

How we collect information about you

We may collect and store information about you whenever you interact with us. For example, when you make a donation, fundraise for us or submit an enquiry, or if you register for our services, or apply for a job or volunteering opportunity, or otherwise give us any other personal information.

We may also receive information about you from third parties for a specific purpose, for example, a referee, if you apply for a job with us – but only if you’ve given them permission to share your information. 

What information we collect


If you support us, for example make a donation, volunteer, apply to be an Ambassador, organise a fundraising event for us, ask for publicity/fundraising items or purchase Christmas cards, we may, depending on the nature of your interaction with us, collect:

  • Your name and address;
  • Your contact details, including telephone number and e-mail address;
  • Information about what news and publications you would like from us; e.g. our Breakthrough magazine and e-newsletters;
  • Information about any donation made; e.g. amount, date and nature;
  • Your financial information for any donation or purchase you choose to make. Please note that if you make a donation via our website, we do not retain details of the credit/debit card used to make your donation. When making a payment via ME Research UK’s website, your card and personal details are provided by you directly to one of our providers of payment processing services (e.g. JustGiving, BT MyDonate, CAF or Virgin Money Giving) which handle all payment transactions made via the website on our behalf. Donations via Facebook are processed by Virgin Money Giving. If you make a donation to us directly with a credit/debit card, we do not retain your card details;
  • Your bank account details if you choose to support us with a regular standing order;
  • Your details required to obtain Gift Aid upon your donation;
  • Information that you choose to submit when contacting us or using particular features on our website;
  • Information about how you would like to be contacted.

We will mainly use your data to:

  • Provide you with the services, products or information you asked for;
  • Administer your donation or support your fundraising, including processing Gift Aid;
  • Keep a record of your relationship with us;
  • Manage your marketing preferences;
  • Understand how we can improve our services, products or information.

Online contact

When someone visits we use a third party service, Google Analytics, to collect standard internet log information and details of visitor behaviour patterns. We do this to find out things such as the number of visitors to the various parts of the site. This information is only processed in a way which does not identify anyone. We do not make, and do not allow Google to make, any attempt to find out the identities of those visiting our website. If we do want to collect personally identifiable information through our website, we will be up-front about this.

If you visit our site anonymously, we may however still record information about:

  • the areas of the website you visit;
  • the amount of time you spend on the site;
  • whether you are new to the site, or have visited it before;
  • how you came to our website – e.g. through an e-mail link or search engine;
  • the type of computer, browser, network location and internet connection you use.

We do this by using cookies, which you can learn more about by reading our cookie policy.

Where we collect information about you from

We collect information in the following ways:

When you contact us directly ​

You may give us your information when giving a donation, purchasing our cards or communicating with us electronically or otherwise.

When you give it to us indirectly

Your information may be shared with us by independent entities; e.g. fundraising sites such as JustGiving, BT MyDonate, CAF or Virgin Money Giving. These independent third parties will only do so when you have indicated that you wish to support ME Research UK, and with your consent. You should check their Privacy Policy when you provide your information to understand fully how they will process your data and what data they will share with us.

How we use your information

ME Research UK will collect data from you to process your donation, personalise your supporter experience or provide you with the goods or services you have requested, and to comply with our administrative duties, financial regulations and the law.

Personal details collected this way will only be used to provide you with information you would reasonably expect or have agreed to.

We promise to make all reasonable efforts to keep your details secure and will only share them in specific circumstance; e.g. with a courier, if items are being dispatched to you.

Except as required by law, we will never share your details with other organisations to use for their own purposes.

Your consent

By giving us your personal information, including sensitive personal data like information about your health, you consent to us collecting and using that information in the ways that we describe in this privacy policy and/or that you have specifically consented to.

If you register or ask to receive our Breakthrough magazine, this may contain marketing material; e.g. leaflets and appeal information. Likewise, if you set up a Standing Order or fundraise for us (and, if via an online site, opt to allow us to make further contact), we will add your details to our Breakthrough postal list.

Marketing consent

We will only send you marketing information by e-mail, SMS or phone if you have given us specific consent. If you withdraw your consent and then subsequently opt in, then your most recent preference will supersede the earlier preference.

If you have responded to an appeal, you may also receive fundraising mail, which you can opt out of at any time.

You can opt out of us using your personal details for marketing at any time, either by calling us on 01738 451234, by e-mail at, or by writing to ME Research UK, The Gateway, North Methven Street, Perth, PH1 5PP.

How we protect your personal information

We take appropriate physical, electronic and managerial measures to ensure that we keep your information secure, accurate and up-to-date, and that we only keep it as long as is reasonable and necessary.

Although we use appropriate security measures once we have received your personal information, the transmission of information is never completely secure. E-mails, online portals and facsimile transmissions are not guaranteed to be impossible to intercept. ME Research UK cannot ensure the protection of your privacy using these communication methods. You may, however, contact us using traditional postal methods.

Your credit card information

If you use your credit card to donate to us, or buy something, we pass your credit card details securely to our payment processing partner, WorldPay, as part of the payment process. We do this in accordance with the Payment Card Industry Security Standard (PDF download), and do not store card details.

How to find out what personal information we hold about you and how to change it

You can request details of the personal information we hold about you under the Data Protection Act 1998. We may ask you for an administrative fee of £10.00.

If you want to update the information we hold for you, or you think any information we have about you is incorrect or incomplete, please get in touch as soon as possible.

Please write to:

ME Research UK, The Gateway, North Methven Street, Perth, PH1 5PP
Telephone: 01738 451234

Our privacy policy may change from time to time, so please check this page occasionally to see if we have included any updates or changes, and that you are happy with them.


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