Prof Julia Newton’s team at Newcastle University are working on an ME Research UK-funded project on severely affected ME/CFS patients, and have put a call out for participants living in the Northern Region (the North of England from North Cumbria to Teesside).
There are two phases to the project. The first is a postal survey consisting of three optional questionnaires – this will help the team to compile a register of severely affected people. The second is to select some people from the register for more in-depth assessment in their own homes.
For more details, patients, their family members or friends should email the Severe ME/CFS team at ‘email@example.com’, or contact:
ME Research UK Severe ME/CFS
BRC Office, Old Victoria Wing
Old Ward 1, Royal Victoria Infirmary
Queen Victoria Road
Newcastle NEI 4LP.
See ‘Severely affected ME/CFS patients – a geographically defined study‘ for background information