These links are for your information only, and ME Research UK does not necessarily endorse their contents. Further information about local ME support groups (including those that do not have their own websites) can be found on the websites of ME Support and the ME Association.

If you would like your organisation listed here, please contact us.

Support groups with ties to ME Research UK

These local ME support groups and organisations share our aim of a medical breakthrough in ME/CFS, and recognise that only biomedical research can achieve this goal. Please contact us if you would like to register your organisation with ME Research UK.

Athlone/Ballinaslo ME/CFS Support Group, Ireland

Established in September 2003 in Ballinasloe, our main objective is to offer support, advice and friendship to ME sufferers, carers and families. Each year during ME Awareness Week we fundraise for research and also raise awareness for the illness.

Meetings: Our meetings are every 6 to 8 weeks, and to date Dr Vance Spence and Dr Basant Puri have come to Ballinasloe and Athlone to talk to us, and we are most grateful. We can be contacted through the Irish ME/CFS Support Group, PO Box 3075, Dublin 2.

Tel: 01-2350965. E-mail: info@irishmecfs.org.

Bristol North Fibromyalgia ME/CFS Support Group

A patients’ group which has Fibromyalgia ME/CFS (FM.E) in common, working towards supporting each other and raising awareness of the issues regarding the complexity of FM.E and its long term effects. The group is open to people who have Fibromyalgia ME/CFS, their carers and family members.

Meetings : We meet on 2nd Wednesday of every month 11.30 – 13.30 at Wescott Community Room, 1 – 9 Wescott Road De Clifford Road, Lawrence Weston, Bristol, BS11 0WG.

Contact: Group Founder/Chairperson Sharon (Shass) Blake Tel: 0844 887 2475 Mob: 0796 393 7383 e-mail: bristolnorthfm.e@gmail.com

Camberwell ME Support Group

Our group (registered charity number 1093659) covers the London Boroughs of Southwark, Lambeth and Lewisham, and surrounding areas, offering support to people with ME/CFS and their carers. We have over 100 members ranging from mildly to very severely affected. Meetings: We offer a programme of social and therapeutic activities, a quarterly newsletter, telephone support, library, practical information and mutual support. Membership costs £5 per year (£2.50 for newsletter only).

Tel: 020 8771 2490 (Gill). E-mail: camberwellme@googlemail.com (Isobel).

Cambridge ME Support Group

We are a friendly group which offers support and information to anyone affected by ME, whether as a patient, carer, family member or otherwise. Please don’t feel you’re alone in battling against this difficult condition — our group can offer help, advice and friendship.

Meetings: We meet regularly, with interesting speakers and social events. Members receive a newsletter, which includes both local and national news about ME, and also have access to our group library of ME-related books, leaflets, tapes and videos.

Tel: Sarah 01638 781199. Website: www.cam-me.org.uk.

Castleford Aid for Myalgic Encephalomyelitis (CAME)

We have been fundraising for research since 1994 with success, and in 1997 we started caring for all of the ill people in our area so that they could benefit at home until a cure is found for this devastating illness.

Meetings: CAME meets every third Thursday in the month. We have a relaxing two hours with other sufferers and carers from all over the Wakefield area, with care, friendship and a listening ear. Our membership list grows, and any help we can give we will.

Tel: Avril J Jones (Chairperson) 01977 517364. E-mail: came4me@aol.com.

Central Scotland ME Support (Central Region)

Meetings: We meet for lunch every Tuesday between 12.00 and 1.30 pm at the Cafe/Bistro, Brucefields Family Golf Centre, Pirnhall Road, Bannockburn, Stirling. Other meetings are advertised widely.

Tel: Alexandra Russell 01786 816478 between 10 am and 6 pm.

Dumfries and Galloway ME Network

We are a friendly group of sufferers and carers who have formed a network throughout the region to offer support and advice. We hold regular meetings at various towns throughout the region.

Meetings: A social get-together is held on the first Saturday of each month between 2 pm and 3.30 pm at Garden Wise Garden Centre, Castle Douglas Road, Dumfries. Other meetings and activities are advertised in our free newsletter.

Tel: Norma 01576 204129. E-mail: craig@dgme.co.uk. Web: www.dgme.co.uk.

Eastleigh and Winchester ME Support Group

A locally-based independent self-help group for sufferers and those caring for people withME/CFS. We aim to offer support, advice and friendship to people with ME/CFS who live in Eastleigh/Winchester and surrounding areas.

Meetings: We meet on the last Saturday of every month (except December).

Tel: 02380 251719. Web: www.eastwinme.ik.com.

Edinburgh MESH

We aim to provide support, information and friendship to people affected by this illness. Although most of our members are ME sufferers, we also welcome carers, family and friends — indeed anyone with an interest in ME.

Meetings: The group has regular meetings and social events — contact the secretary or the website for details. Contact: Edinburgh ME Self-Help Group, Secretary, Morag Macpherson, Flat 5, 4 Ritchie Place, Edinburgh, EH11 1DU.

Tel: 0131 432 5002. Web: www.edmesh.org.uk  E-mail: secretary@edmesh.org.uk

Falkirk ME Self-Help Group

We are a self-help group covering Falkirk and surrounding areas. We provide support, information and friendship to ME/CFS sufferers, carers and friends. We have a varied programme of guest speakers and open evenings, which provide a good opportunity to chat with fellow sufferers/carers, plus the occasional social event. In addition we have a bi-monthly newsletter available to all members and we now have a new website at www.falkirkmesh.org.

Meetings: Our regular meetings are held on the 2nd Thursday of each month, from 6.30 pm in the CVS Centre in Callender Business Park, Falkirk.

Contact: Richard Zak at 01324 871480 or richard.zak@blueyonder.co.uk, or Janette Davis at 01236 735498 or janettedavis58@icloud.com. You may also find us on Facebook in Groups under Falkirk ME Self Help Group.

Galway ME Support Group, Ireland

Established in 2001, the Galway ME Support Group aims to raise awareness of ME/CFS through the media, as well as organising information meetings for ME/CFS sufferers and their families. For the last few years we have organised collections to raise money for research during ME Awareness Week.

The Group can be contacted through the National Irish ME/CFS Association. Tel: 01-2350965. E-mail: info@irishmecfs.org.

Glasgow Cathcart ME Support Group

Established in 1990, this group covers patients in South Glasgow and East Renfrewshire. It is an informal group, run by ME sufferers, which aims to provide assistance and support to fellow ME, Chronic Fatigue and Post Viral Fatigue sufferers and their carers, through friendship, a listening ear, advice, relevant literature and signposting to other agencies. The Group representatives are also involved in the Cross Party Group on ME in the Scottish Parliament, and in discussion with NHS Greater Glasgow regarding the provision of Clinical Services for ME/CFS. The group also supports research programs into the illness.

Meetings: On the last Thursday of the month (except December), in Cathcart Trinity Church Hall, 90 Clarkston Road, Glasgow.

Tel: John McKnight 0141 632 2486, Tony Coleman 0141 571 1991.

Hampshire Friends with ME (incorporating the Isle of Wight)

We are a county-wide support group (registered charity number 1101610) established to help, inform and support people with ME/CFS, and their carers and families, in Hampshire and the Isle of Wight. We produce regular newsletters and bulletins and run a contact list to facilitate members being able to keep in touch with each other. We also operate a telephone support line and a home visiting service for the severely affected.

Meetings: Within our group are several branches which organise regular meetings, and occasional social events and outings, throughout Hampshire and the Isle of Wight.

Tel: Sue on 0239 242 0732. E-mail: membership@hantsmesupport.co.uk. Web: www.hantsmesupport.co.uk.

Herefordshire CFS/ME/FMS Group

The members of the Herefordshire CFS/ME/FMS Group aim to give each other support, to share information and to campaign for proper levels of health care within the NHS. We keep an eye on developments around the country regarding services and research, and we work closely with other groups in the West Midlands, so that we can keep members informed. We are also involved in making sure that ME sufferers get the treatment they need from the NHS.

Meetings: Informal monthly meetings, occasionally with a speaker, are held for members who are well enough to attend, and a monthly newsletter is posted to all members.

Tel: John 01432 850426. E-mail: herefordmegroup@care4free.net. Web: www.herefordme.org.uk.

Inverness and District ME Group

We are an informal support group for anyone of any age suffering from any of ME/CFS/Post Viral Fatigue/Fibromyalgia. We meet for a chat and mutual support. Please feel free to come and meet us!

Meetings: We meet on the first Wednesday of every month from 1 to 3 pm at the Craigmonie Hotel, Annfield Road, Inverness. From October 2010, the venue changes to the Chieftain Hotel, Millburn Road, Inverness. (The January meeting will take place on the second Wednesday of the month.)

Tel: Fiona 01463 220757, Brenda 01463 238533, Suzy 01463 790644.

Isle of Man ME Support Group

ME Support (IOM) is a local charity based in the Isle of Man since 1987 (reg. charity no. 381). We aim to provide support and information for those with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, and support for family members or carers affected by it.

Meetings: The group is run by people with first-hand experience of ME/CFS, and we hold monthly meetings at various locations throughout the Island. Membership is free and all are welcome.

E-mail: mesupportiom@manx.net

Tel: Chair Celia Marshall 01624 621925, Treasurer Olwyn Henthorne 01624 620178.

Lanarkshire ME Support Group

The group is a self-help group for sufferers and carers who are seeking support, advice and information. We aim to provide a safe place where sufferers can discuss their illness and get support from each other. The group tries to keep abreast of all the latest positive developments in ME research and will provide some information on this, or how to obtain that information. Group members have also taken an active part in ME research carried out by researchers in the Glasgow area.

Meetings: The support group meets informally only at present as previous local authority premises are no longer available. Most contact is currently by telephone. The group can also provide details of other groups who do meet up formally on a regular basis.

Tel: Jane Giakoumakis 01698 817114. E-mail: janeyannis@talktalk.net.

Lochaber PVFS/CFS/ME Support Network

This recently established group allows people with the illness and their carers to get in touch with one another for friendship, support and (non-medical) advice. All are welcome and joining costs nothing.

Meetings: The group meets for a cuppa and a chat at 3 to 4 pm on the first Tuesday of every month at the Isles of Glencoe Hotel, Ballachulish. An ME Awareness Day meeting will be held on Thursday 12th May 2011, 3 to 4 pm in Fort William Library, with refreshments and a chance to talk.

Tel: Please text or leave a message for Meg on 07786 590450. E-mail: m.e.lochaber@googlemail.com. Web: Facebook page.

MESHcornwall CFS/ME Support, Help & Advice

Established in 1987, this group aims to support CFS/ME patients and their carers, offering advice, friendship and information through meetings, local contacts and regular newsletters. There is also group representation on the local liaison committee of the NHS CFS/ME service. The group raises county-wide awareness of CFS/ME through various events and the use of local media.

Meetings: The group holds occasional meetings, promotes local CFS/ME Community Groups and one-to-one contacts. Details can be found on the website – www.meshcornwall.co.uk – and in MESH Newsletters.

For membership – Tel: 01872 242363  or E-mail: fran@idless.com. and for general/enquiries contact  meshcornwall@live.co.uk.

 

ME Support Fife

ME Support Fife is working towards independent charity status, and is a Fife-based support organisation for people with ME. In the near future it aims to develop support, both medical and educational, for children and young people with ME in the Fife area. There is a regular newsletter, and the Group meets on the second Monday of each month. The Group supports ME Research UK with fundraising activities whenever possible. Fife now has a Specialist Nurse for ME, and his post has been assured for permanence.

Meetings: VONEF (right next to main Post Office), Crossgate, Cupar.

Tel: Catherine Lewis 01334 653202. E-mail: catherine@claremont-cupar.freeserve.co.uk.

ME Support Norfolk

ME Support Norfolk has been in existence for almost 20 years, having originally begun as a local branch of one of the national ME charities. Since 2000, when our current name was adopted, we have been an independent self-financing support group catering for that part of Norfolk not covered by our sister group, West Norfolk ME Support.

Meetings: We meet monthly, every second Tuesday, and have speakers at some of our meetings. At our AGM we usually have a main guest speaker, and other meetings are advertised in our newsletters which come out every month.

Tel: Barry Wiseman (Chairperson) 01603 745101.

Milton Keynes ME Group (MK MEG)

MK MEG is a self-help support group for people with ME/CFS, Post Viral Fatigue Syndrome and Fibromyalgia, and their carers, in the Milton Keynes area. We produce a newsletter every other month.

Meetings: we meet monthly (except in December). Sometimes we have a speaker, either on a topic relevant to the illnesses or on one of more general interest; other meetings are informal get-togethers. At all meetings there is time to chat over refreshments. For details of meetings, please contact us or check our website.

Tel: 0845 1232649. E-mail: ME_CFS_enquiries@mkmeg.org.uk. Web: www.mkmeg.org.uk.

Network MESH (West London)

We are registered charity with 180 members covering West London, founded in 1988. We try to reduce the isolation many people with ME experience and provide advice and support. Our newsletter comes out four times a year and we arrange meetings. Some meetings are purely social but at some we have speakers on topics of interest to members. We are also active in raising money for biomedical research. We have been fully involved in the setting up of a local CFS/ME clinic at Hillingdon Hospital, which takes referrals from GPs across West London.

Tel: Tony Golding (Chair and Treasurer) 020 8400 1904. E-mail: tony@bedfordpark.demon.co.uk.

Newry & Mourne ME/FMS Support Group

Support Group based in Northern Ireland.

Meetings: The Newry and Mourne Group meets on the 1st Tuesday of each month in the Mourne Country Hotel, 52 Belfast Road, Newry, County Down at 7 pm.

Tel: Joan McParland 07712 892 834 (weekdays 2 to 4 pm). E-mail: joanmcparland@live.co.uk.

Northallerton and District ME Support Group

We are a small, friendly, informal group who provide mutual support and exchange information whilst enjoying a chat and cup of tea. We welcome anyone living in Northallerton itself and the surrounding areas who have an interest in ME (sufferers, their families and carers).

Meetings: The group meets on a monthly basis in a central Northallerton location. Meetings take place from 1.30 to 3.30 pm. The meeting room has full disabled access with parking and transport links nearby.

If you would like to come along to a meeting or find out more about the group, please contact 07949 694 640 or 07415 341 391 on weekdays between 1 and 6.30 pm.

Paisley and District ME Support Group

A local independent group offering support to people with ME/Chronic Fatigue.

Meetings: Meets on the second Wednesday of each month at the Disability Resource Centre, 74 Love Street, Paisley from 2 pm to 4 pm, offering advice, information and mutual support to sufferers and their carers.

Tel: Theresa Bates (Chair) 0141 561 3426 or Theresa Hamill 0141 561 6928 or Robert Watson 01505 842954. E-mail: theresa@me-paisley.co.uk. Web: me-paisley.co.uk.

Perth ME Support Group

A friendly local group based in Perth.

Meetings: Normally on the 1st Tuesday of the month, at The Grampian Hotel, 37 York Place, Perth from 7 to 8.30 pm.

Tel: Elizabeth Moncrieff 01738 621933 (after 11 am). E-mail: elibmon@gmail.com.

Peterborough ME and CFS Self-Help Society

The group was formed in May 2000 to raise the public awareness of ME/CFS. We offer support to those affected by these illnesses and aim to gather information for those interested in this area for personal or professional reasons. We provide advocacy and home visits where possible, and we also work closely with health authorities regarding policy and services for and awareness of ME.

Meetings: Every fourth Monday of the month (except January, February, June, August and December) from 2 to 3.30 pm at the Healthy Living Centre (blue building near Thomas Walker Medical Centre), Princes Street Peterborough PE1 2QP.

Contact: Lynn, Jon or Di. Tel: 01733 552872. E-mail: info@peterboroughme.fsnet.co.uk. Website: www.peterboroughme.co.uk.

Richmond and Kingston ME Group

This group supports ME sufferers and their family and friends principally in the London Boroughs of Richmond and Kingston. We have a bi-monthly newsletter, library, telephone helpline, telephone contact list, coffee mornings and an e-mail chat group. We have a current membership of about 80 members.

Tel: 07984 860 309. E-mail: skip812-rkmegroup@yahoo.co.uk. Website: www.richmondandkingstonmegroup.org.uk.

Salus Fatigue Syndrome

We aim to provide support, advice and education to people living with ME/CFS and related Fatigue Conditions. We also extend our support to families, friends and carers. The Foundation offers support groups, education days, and relaxation classes that are all funded through external funding and our own fundraising. We have a very active, positive and enthusiastic board of trustees, management team, fundraising team and steering group that drives Salus! We have made a difference to 120 local people living with ME/CFS over the last two years. We are very passionate about creating more awareness about these conditions where we have been invited to present in May 2012 to all local GPs at Good Hope Hospital. The charity is also very active within our local communities.

Contact: Linda Jones. Tel: 07894 205155. E-mail: info@salus.org.uk. Web: www.salus.org.uk.

Sheffield ME Group

Sheffield ME Group is a support group for people affected by ME in Sheffield and surrounding areas. We have regular meetings, socials and an annual conference, as well as a quarterly newsletter and a postal library. We have an Information Line and also a daily Listening Ear helpline.

Meetings: Please see the website or phone the number below.

Contact: The Circle, 33 Rockingham Lane, Sheffield S1 4FW. Tel/Fax: 0114 253 6700. E-mail: info@SheffieldMEgroup.co.uk. Web: www.SheffieldMEgroup.co.uk.

Shropshire and Wrekin ME Support

The group currently has a membership of over 150 ME sufferers. We are here to offer a point of local contact to all who have to live with this dreadful condition, and attempt to help members in a number of ways: by a local newsletter sent to members at approximately monthly intervals, and by holding local group meetings where fellow sufferers can exchange ideas and gain mutual support.

Meetings: We hold regular local group meetings where fellow sufferers can exchange ideas and gain mutual support. Contact us for details.

Contact: Monica Dalby. E-mail: dalby_50@hotmail.com.

Solihull and Birmingham ME Group

Solihull and South Birmingham ME Support Group is an independent, self-supporting group set up to provide support for sufferers of ME/CFS living in the Solihull and South Birmingham area.

Meetings: We have ten monthly meetings a year (not August or January). Meetings are usually informal, and open for chat and discussion.

Contact: Jenny, c/o 59 Cartland Road, Stirchley B30 2SD. Tel: Janet 0121 449 8133. E-mail: jlgriffin@blueyonder.co.uk. Web: www.ssb4mesupport.weebly.com.

South Molton ME Support Group, North Devon

We are a fairly small and very friendly group, run by people with ME and carers. Meetings are fully reported in regular personal-style newsletters, which follow each meeting to keep those informed who cannot be there. We also operate an e-mail news update system for members with access to e-mail. We aim to raise awareness of and disseminate quality information about ME/CFS within the wider community, including amongst health professionals, and to provide support and information to those with ME/CFS in our community and, with the use of information technology, beyond. (Our members mainly live in the area around South Molton up to Barnstaple and Braunton and the Exmoor coast, but we do have others as far afield as Torrington and Cullompton). Increasingly, as awareness and knowledge improves, we see our purpose also as raising awareness about and fundraising for biomedical research into the cause of ME/CFS.

Meetings: We hold fairly informal meetings approximately monthly at Ann’s house (details from Ann). We either have a speaker or discuss a particular issue, or are just there for one another. We have a summer (BBQ) social event and a Christmas lunch at a local hostelry.

Tel: Ann 01769 572738 or Jacqui 01769 572207. E-mail: jacquiftmn@ukonline.co.uk.

Sunderland and South Tyneside ME/CFS Support Group

We are a locally-based, independent charitable organisation that is run by volunteers, the majority of whom have ME/CFS. The founders, a small number of volunteer sufferers and carers, set out to provide support for the increasing number of people diagnosed with the condition. As one of the largest support groups in the North-East, we attract members from both the local and regional areas and as such offer an open door policy to any interested parties. Some members who are unable to attend our meetings stay in touch by telephone, fax, post and e-mail, and are kept informed through our quarterly newsletter. We have monthly meetings, social events and quarterly newsletter workshops.

Meetings: We meet on the 3rd Wednesday of each month (except December) at 7 pm in the Nookside Centre, Grindon, Sunderland.

Contact: c/o 25 St Vincent Street, South Shields NE33 3AR. Tel: Pauline 0191 455 6959. Web: www.mecfs.co.uk.

Sussex and Kent ME/CFS Society

Our twenty year old organisation is a registered charity that informs, supports and represents many of those affected by ME/CFS across Sussex and Kent.

Tel: 01273 674828. Web: www.measussex.org.uk.

Warwickshire Network for ME

Based in Rugby and Coventry but networking throughout Warwickshire, the group actively supports biological research into ME and campaigns for appropriate services for people with the illness. A quarterly newsletter and group e-mail/telephone contact list enables the severely affected and the housebound to be in contact with others locally. The group stresses that it wishes to see a diagnostic test for the illness, more effective treatments and of course ultimately a cure.

Meetings: As many of the group are housebound and from a wide geographical area, the majority of contact is currently by e-mail or telephone.

Contact: Duncan Cox 01788 812440 (pref. 12 to 2 pm or after 4pm), Patricia Lake 01789 488346 (pref. 10 am to 2 pm or after 4pm), Tracey Browett 024 76 451526 (pref. after 2 pm). E-mail: warksnetworkforme@ukonline.co.uk.

Welsh Association of ME & CFS Support (WAMES)

WAMES gives a national voice to people with ME and CFS in Wales, their carers and families, in order to improve services, access to services, awareness and support. Encompassing six local ME support groups in Wales – each run independently – namely Anglesey & Gwynedd Fibromyalgia/ME Group, Carmarthenshire ME Group, Clwyd ME Support GroupME Support in Glamorgan (MESiG), Montgomeryshire ME/Fibromyalgia Group and North/Mid-Ceredigion ME Group.

Contact details and meeting times/locations for each group can be found at wames.org.uk.

Worcestershire ME Support Group

Worcestershire ME Support Group is for people with ME/CFS Fibromyalgia within the Worcestershire area.

Meetings: Monthly informal gatherings are held in Worcester, Malvern, Kidderminster, Pershore and Droitwich. Check the meetings page on our website for dates and details.

Tel: Dot Sumner (Group Secretary) 01684 566274. E-mail: worcsmegroup@yahoo.co.uk. Web: worcsmegroup.weebly.com.

UK regional support groups

  • Aberdeen (ME and You Aberdeen) – Facebook page “We meet on the second Thursday of every month from 2 pm. Find us in the cafe next to reception in Holiday Inn Express, Chapel Street, Aberdeen. or contact gregor.mcabery@mac.com or elainecheshire@hotmail.com.
  • Andover Fibromyalgia and ME Chatterbook Group “Bringing the Andover Community together who live with Fibromyalgia & ME and their families so they can gain empathy, understanding and support from each other. Our meetings are on the first Friday of each month 4 to 6 pm. Members only – online secure/confidential chat via tumblr.com to use between meetings. We organise fun activities at meetings including bingo, quizzes and provide FMS & ME information. We continue to raise awareness within the community and organise many fundraising events. Please feel free to check out our website or contact us via email: andoverfms.me.chatterbook@live.co.uk.”
  • Beccles and District ME/CFS Support Group “Formed in November 2000 from a mixture of sufferers and carers. Meetings are held every month, including socials and speakers.
  • Bedfordshire ME Support Group “The Group offers free membership to all Bedfordshire ME sufferers, their families, carers and friends, of all ages. It provides a monthly meeting, a telephone helpline, help by e-mail, information and news.
  • Bury/Bolton ME/CFS Support Group “Aimed at supporting carers and sufferers from ME. There are an estimated 680 sufferers in Bolton and 460 in Bury, according to Action for ME national figures.
  • Cambridge ME Support Group “We hold regular meetings, have a library of relevant books and send a newsletter to local people who have ME/CFS. We also support their families, carers and friends.
  • Chester MESH “A Chester-based self-help group for those people suffering with CFS/ME (Chronic Fatigue Syndrome/Myalgic Encephalomyelitis) who wish to be pro-active in their own recovery programme.
  • Colchester MESH Group “We are a registered charity serving sufferers (family and friends) from mainly Colchester and the surrounding area of North East Essex.
  • Dumfries and Galloway ME Network “We are a friendly group of sufferers and carers who have formed a network to offer support to one another. We hold regular meetings at various towns throughout the region.
  • East Anglia ME Patient Partnership Group “An umbrella group with corporate members representing local ME Support Groups from around the region.
  • East Lancashire ME/CFS Support Group “We are one of over 400 self-help, non-profit-making groups which span the country. Our group was founded in 1989 and is run entirely by volunteers – most of whom suffer from ME themselves.
  • Edinburgh ME Self-Help Group “We aim to provide support, information and friendship to people affected by this illness. Although most of our members are ME sufferers, we also welcome carers, family and friends — indeed anyone with an interest in ME.
  • Falkirk MESH “We are a self-help group covering Falkirk and surrounding areas. Our regular meetings are held on the 2nd Thursday of each month, from 6.30 pm in the CVS Centre in Callender Business Park, Falkirk. We provide support, information and friendship to ME/CFS sufferers, carers and friends. We have a varied programme of guest speakers and open evenings, which provide a good opportunity to chat with fellow sufferers/carers, plus the occasional social event. In addition we have a bi-monthly newsletter available to all members and we now have a new website at www.falkirkmesh.org. Contact Richard Zak (01324 871480 or richard.zak@blueyonder.co.uk) or Sarah Grieve (07717 758146 or sarahfmesh@live.co.uk). You may also find us on Facebook in Groups under Falkirk ME Self Help Group.
  • Hampshire Friends With ME “The aims of the group are to give support, information and help when needed, to raise awareness of ME/CFS, to put people in touch with each other, to produce a newsletter to be sent to all members, and to promote and publicise both the Group and other local and national groups supporting people with ME/CFS.
  • Herefordshire CFS/ME/FMS Group The aim of the group is “to give each other support, to share information and to campaign for proper levels of health care within the NHS”.
  • Leeds ME Network “Leeds ME Network is a patient self-help network sharing information of interest to people with ME/CFS in Leeds and surrounding parts of Yorkshire. Our website has details of local meetings, services, courses, etc. Contact us at leedsmenetwork@gmx.com.
  • Lincoln MESH Group “We are a local self-help group for ME and Chronic Fatigue sufferers, their families, carers and friends. MESH currently has 80 members. We have undergone many changes recently and have some exciting plans for the future.
  • Liverpool and District ME Support Group “A support group for people with ME/CFS/PVFS. Its aim is to help and support each other with what can be a very isolating illness on all levels. A place where people can share their experiences of this illness and everything that goes with it.” The group meets at St Mary’s Millenium Centre, West Derby Village, Liverpool. E-mail: me.liverpool@yahoo.co.uk.
  • Lochaber PVFS/ CFS/ ME Support Network “The website contains useful information for those with the illness, their carers, families and friends, as well as information for healthcare professionals. The group would like to thank web designer Vernon Rogers of Aquila Scotland for his continuing work on the website. People who are too ill to go online can still get in touch with the group by phoning or texting 07786 590450.
  • MEnU “A voluntary organisation in Billericay (Essex) offering support to young people aged from 11 to 25 years who suffer from ME or chronic fatigue symptoms. Opportunities are provided for young people to meet socially in a safe, caring environment, to make contact with one another in other ways and to have access to relevant medical information and self-management skills, in order to combat isolation and improve their quality of life. All who are 11 to 25 years from Billericay and adjacent areas are welcome. Meetings will be held fortnightly on Fridays 3 to 4 pm in the comfortable safe surroundings of The Link, Queens Park Avenue, Billericay. Refreshments provided. Drop in, or drop in and stay. For meeting dates, please contact dave.chuck@yahoo.co.uk.
  • Mid and West Wales ME Support Group Support for sufferers in Mid-Wales.
  • Milton Keynes ME Group “A self-help group for people with Myalgic Encephalomyelitis (or Encephalopathy), Chronic Fatigue Syndrome, Post Viral Fatigue Syndrome and Fibromyalgia Syndrome, and their carers, in the Milton Keynes area.
  • Morecambe Bay ME Group “An association of local people, both sufferers and carers, who have come together to provide mutual support and companionship, to keep members updated with medical research and treatment regimes, to give information and advice about benefits, social services and aid agencies, and to campaign for better NHS services within the Morecambe Bay area.
  • North East “We are a regional charity for an area from the Scottish borders to North Yorkshire. We offer free membership, a comprehensive information pack on registration, a quarterly newsletter and opportunities to join us in social get togethers, local groups and conferences.
  • North Herts ME Support Group “Supporting people in North Herts who are affected by ME/CFS.
  • North London ME Network “We are a self-help network for people with ME and their carers. We exist primarily to help those with ME to make contact with one another for mutual support, exchange of information and to reduce the isolation we often experience with ME.
  • Oxfordshire Myalgic Encephalomyelitis Group for Action (OMEGA) “Members give each other friendship and support, exchange information about treatments, and learn from each other about the management of this long-term illness. We have regular meetings and socials throughout the county, plus a meditation group and run successful campaigns for better treatment.
  • Paisley and District ME Support Group “We are a small group of ME sufferers who meet monthly to share experiences and cheer each other up. Talking with people who know and understand what you are going through really does help. Listening to those who have improved their lot gives you hope for the future.” E-mail: theresa@me-paisley.co.uk. Tel: 0141 5613426
  • Peterborough ME and CFS Self Help Group “Formed in May 2000, to raise the public awareness of Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). We offer support to those affected by ME and CFS and aim to gather information for those interested in this area for personal or professional reasons.
  • Plymouth and District ME Group Provides information and support for people with ME/CFS, their family and friends. Contact: 44 Skylark Rise, Woolwell, Plymouth PL6 7SN. E-mail: ruttershome@blueyonder.co.uk. Tel: 01752 214856.
  • Portadown and Armagh and Dungannon ME Support Groups “Self-help groups for those suffering with ME and their carers. The groups’ aim is to share their collective experiences. They hold regular monthly meetings to offer support and to share experiences and information. The membership covers a wide area and new sufferers and their carers of all ages are most welcome. The monthly meetings have guest speakers drawn from various disciplines who are able to present what they feel can help people with ME.
  • reMEmber “Helping people with ME get the best possible treatment to enable them to lead full and healthy lives. Also offers regional support to ME sufferers in East and West Sussex, Surrey, Kent, and Hampshire.
  • Richmond and Kingston ME Group “This group supports ME sufferers and their family and friends principally in the London Boroughs of Richmond and Kingston. We have a bi-monthly newsletter, library, telephone helpline, telephone contact list, coffee mornings and an e-mail chat group. We have a current membership of about 80 members.” E-mail: skip812-rkmegroup@yahoo.co.uk.
  • Sheffield ME Group “Run by sufferers for sufferers as a point of contact, information and support for people with ME/CFS of all ages and their families and carers in the area.
  • Sheffield Yoga for ME/CFS “Runs remedial yoga classes in the Sheffield area and has some useful information on yoga applied for those with ME or CFS on the information page of their website. This includes relaxation and specially adapted yoga tape/CD reviews, benefits of yoga for those with ME or CFS, feedback from members and survey results.
  • Shropshire and Wrekin Support for sufferers in Shropshire. E-mail: dalby_50@hotmail.com.
  • Solihull and South Birmingham ME Support Group “An independent, self supporting group set up to provide support for sufferers of ME/CFS living in the Solihull and South Birmingham area.
  • South East MeetUp is a website with links and contact information for ME support groups in the South East of England. There is also information about other ME associations and websites, and general advice for people with the condition.
  • Staffordshire ME Support “We are an active and caring support group for people with ME and associated Chronic Fatigue conditions, such as CFS, PVFS and Fibromyalgia. We cover the whole of Staffordshire and closely surrounding areas.
  • Stockport ME Group “Health and Education Regarding ME in Stockport.
  • Sunderland and South Tyneside ME/CFS Support Group “A locally based independent, charitable organisation that is run by volunteers, the majority of whom have ME/CFS.”
  • Sussex ME/CFS Society “A registered charity that informs, supports and represents those affected by ME/CFS in East Sussex, West Sussex and Kent.
  • Welsh Association of ME and CFS Support “An umbrella body set up in April 2001 with the aim of giving a united voice to ME and CFS sufferers in Wales.
  • West London ME Group “Our main purpose is to provide mutual support to fellow members, circulate the latest research on ME, and campaign for the fair treatment of sufferers, to provide a true representation of the effects of the illness, and also to inform non-sufferers and less knowledgeable doctors, through real life articles, that M.E is a devastating physical condition suffered by hither-to bright active members of the community.
  • Worcestershire ME Support Group “For people with ME/CFS/Fibromyalgia within the Worcestershire area.
  • York and District ME Support Group “An independent group that provides support and information to people who have ME, their carers, family and friends.

International regional support groups

Europe

  • Association Francaise du Syndrome de Fatigue Chronique et de Fibromyalgie French CFS association (in French).
  • Associazione Italiana Sindrome da Stanchezza Cronica Italian CFS association (in Italian).
  • Danish ME/CFS Association “ME/CFS Foreningen is the Danish ME/CFS Association. It was founded in 1992 and counts almost 500 members today. The purpose of the association is to provide factual information about ME/CFS to patients, families, health care professionals, and social authorities, and to offer support for patients and their families. The association offers: A magazine published 4 times a year; Research and coping information about ME/CFS; Information for doctors; Local support groups; Patient advisors and diet advisor; Legal advisors; and a child and youth group.
  • Fatigatio eV German ME/CFS association (in German).
  • Irish ME/CFS Association This organisation has more than 400 members nationwide. It has regular meetings, often with guest speakers, in Dublin, organises a telephone network list, and produces a 30-page quarterly newsletter. It is involved in helping set up support groups around Ireland — currently there are four. The group is currently concentrating on raising money for research and raising awareness of the condition. Write to: PO Box 3075, Dublin 2. Tel: (01) 2350965. Fax: (01) 4968360. Email: info@irishmecfs.org.
  • Irish ME Trust “The Irish ME Trust provides information and support to suffers of ME and CFS in Ireland, employing a qualified counsellor with an in-depth knowledge of ME. As well as arranging meetings for members around the country, it supports members’ applications for government department benefits, and continues to lobby Government agencies for proper recognition of the illness and the establishment of a definitive clinic for diagnosis and treatment. The group feels strongly that ME patients need to see biomedical research into their condition, as well as the social and community care support that they deserve.
  • ME Platform Dutch CFS organisation (in Dutch).
  • Norwegian ME Association “The Norwegian ME Association, Norges Myalgisk Encefalopati Forening, was founded in 1987. At the end of 2003 we counted 743 members from all over the country. We have an office in Oslo, centrally located behind the university and close to the palace, and have established ‘self-help’ groups in many counties. Every other week we have ‘open house’ for members or anyone who wants to talk to us, get more information or buy books on the subject (only in English). We provide factual information about ME to lay and health professionals, help and support people with ME and their families and carers, and produce a magazine and newsletter.
  • Waterford ME Support Group Annmarie Buckley, 3 Cezanne Drive, Norwood, Waterford, Ireland. Tel: 00 353 51 358268 or 00 353 87 2436294. E-mail: annmarie_buckley@hotmail.com.

USA and Canada

  • Cf Alliance Offers free international services specifically for Chronic Fatigue Syndrome (CFS), Myalgic Encephalomyelitis (ME), Fibromyalgia (FM) and related illness sufferers of all ages, including their families, friends, support groups and caregivers worldwide.
  • MESS ME Support Services is a volunteer organization based in Toronto dedicated to helping those who suffer from ME/CFS. By keeping abreast of current medical research into the condition, as well as the latest treatment strategies (both pharmaceutical and holistic), MESS strives to foster understanding of this condition and the difficulties in living with it.
  • Nova CFS/FMS Support Group “Meetings, web, e-mail outreach and telephone conferences for those with CFS, FM, ME and similar conditions in the Washington, DC, USA area and beyond. Long distance members welcome.
  • PANDORA “Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy, Inc. PANDORA’s mission is to create and raise awareness, provide support and educational resources, establish partnerships, support research, encourage creation of empowerment groups, organise conferences, and advocate for quality of life issues for persons with Neuroendocrineimmune Disorders such as chronic fatigue syndrome, fibromyalgia, Gulf War syndrome, multiple chemical sensitivities and other related illnesses.
  • Wisconsin CFS Association “Our purpose is to act as a clearinghouse for CFS information within the state of Wisconsin; to assist patients and their families; to encourage communication among agencies, institutions and concerned individuals; and to promote research on the cause, cure and ultimate prevention of chronic fatigue syndrome.

Australia and New Zealand

  • Chrysalis The CFS Youth Support Group of Western Australia
  • ME/CFS Society of New South Wales “Committed to assist people who are adversely affected by ME/CFS, with special emphasis upon the people of New South Wales. Provides information and support to all who are affected by ME/CFS and related illnesses, promotes accurate awareness of ME/CFS within medical and scientific communities and the wider public, and supports research into the pathophysiology and treatment of ME/CFS.
  • ME/CFS Society of South Australia “Aims to improve the quality of life and health management of people with ME/CFS, whilst supporting community education and research initiatives.
  • ME/CFS Society of Victoria “A non-profit charitable organisation dedicated to serving the CFS community in Victoria and Tasmania.

UK charities and organisations

  • Action for ME “A national charity campaigning to improve the lives of people with ME in the UK.
  • Association of Young People with ME “A UK-based, independent, registered charity dedicated to giving help, friendship, support and vital contact to children and young people with ME.
  • Blue Ribbon for the Awareness of ME “Publicises and creates awareness of ME and its consequences.
  • CFS Research Foundation “The CFS Research Foundation was officially launched in 1993 to bring together the best minds to meet the challenge presented by chronic fatigue syndrome, encouraging basic research into the body mechanisms that lead to and continue the illness.
  • Falcon Academy “This is a newly established not-for-profit organisation which has been created to provide an education (including social well-being development) for those who have CFS/ME. It has a special focus on those with moderate to severe forms of the condition, and initially we will be looking at providing education for those in the 17–25 age group.
  • FOR ME Fund for Osteopathic Research into Myalgic Encephalomyelitis. “Dedicated to helping osteopathic research into chronic fatigue syndrome (CFS/ME) also known in the USA as CFIDS. FORME has funded research for the past 9 years that has led to the scientific support of The Perrin Technique™.
  • Invest In ME “We are an independent group campaigning for biomedical research into Myalgic Encephalomyelitis (ME), as defined by WHO-ICD-10-G93.3. Our aim is to bring together like-minded individuals and groups to campaign for research.” See also Have A Cuppa For ME.
  • ME Association “Aims to support, to help, to inform and to empower all those whose lives are affected by ME/CFS.
  • ME Northeast “A regional charity for an area from the Scottish borders to North Yorkshire.
  • National ME Centre “Provides a unique blend of help, care and support to sufferers and their families: The Centre offers a fully integrated service for the management of this complex illness. This includes, and is dependent upon, the skills of professional clinicians and therapists as well as volunteer support workers, many of whom have themselves experience of ME.
  • A Place For ME “Our purpose is to provide adapted housing and specialist care to those with ME. We hope to set up households of four people with severe ME to support one another and share resources. A Housing Association will provide a house with sound-proofed bed-sitting rooms, air-conditioning and wheelchair adaptions. Two live-in carers, from the ME Care agency, will supply 10 hours of care to the household each day.
  • RiME — Research into Myalgic Encephalomyelitis Campaigns nationally for research into the underlying physical causes and disease processes of ME. RiME publishes a Newsletter twice a year, usually in spring and autumn. All past issues are available here as individual RTF files. The organisation’s latest project is to do with the All Party Parliamentary Group on ME.Search ME“A young charity which has made its mark locally and now plans to hit a wider audience in 2005. Its goal is to raise a number of issues to help illustrate the problems that many thousands of people suffering from ME experience on a daily basis and to tell you how you can help us to help them.
  • 25% ME Group “Support for severely affected ME sufferers, the 25% of sufferers who remain long term ill and disabled by the disease.
  • Welsh Association of ME and CFS Support “An umbrella body set up in April 2001 with the aim of giving a united voice to ME and CFS sufferers in Wales.
  • Young Action Online / Tymes Trust “A concentrated resource of solid information from creditable sources for young people with ME, their families and professionals.

European charities and organisations

  • Association Francaise du Syndrome de Fatigue Chronique et de Fibromyalgie French CFS association (in French).
  • Associazione Italiana Sindrome da Stanchezza Cronica Italian CFS association (in Italian).
  • Danish ME/CFS Association “ME/CFS Foreningen is the Danish ME/CFS Association. It was founded in 1992 and counts almost 500 members today. The purpose of the association is to provide factual information about ME/CFS to patients, families, health care professionals, and social authorities, and to offer support for patients and their families. The association offers: A magazine published 4 times a year; Research and coping information about ME/CFS; Information for doctors; Local support groups; Patient advisors and diet advisor; Legal advisors; and a child and youth group.
  • Fatigatio eV German ME/CFS association (in German). Bundesverband Chronisches Erschöpfungssyndrom is a large independent organisation representing people with ME/CFS in Germany.
  • Irish ME/CFS Association This organisation has more than 400 members nationwide. It has regular meetings, often with guest speakers, in Dublin, organises a telephone network list, and produces a 30-page quarterly newsletter. It is involved in helping set up support groups around Ireland — currently there are four. The group is currently concentrating on raising money for research and raising awareness of the condition. Write to: PO Box 3075, Dublin 2. Tel: (01) 2350965. Fax: (01) 4968360. E-mail: info@irishmecfs.org.
  • Irish ME Trust “The Irish ME Trust provides information and support to suffers of ME and CFS in Ireland, employing a qualified counsellor with an in-depth knowledge of ME. As well as arranging meetings for members around the country, it supports members’ applications for government department benefits, and continues to lobby Government agencies for proper recognition of the illness and the establishment of a definitive clinic for diagnosis and treatment. The group feels strongly that ME patients need to see biomedical research into their condition, as well as the social and community care support that they deserve.
  • ME Platform Dutch CFS organisation (in Dutch).
  • Norwegian ME Association “The Norwegian ME Association, Norges Myalgisk Encefalopati Forening, was founded in 1987. At the end of 2003 we counted 743 members from all over the country. We have an office in Oslo, centrally located behind the university and close to the palace, and have established ‘self-help’ groups in many counties. Every other week we have ‘open house’ for members or anyone who wants to talk to us, get more information or buy books on the subject (only in English). We provide factual information about ME to lay and health professionals, help and support people with ME and their families and carers, and produce a magazine and newsletter.

American and Canadian charities and organisations

  • CFIDS Association of America “The nation’s leading charitable organization dedicated to conquering chronic fatigue and immune dysfunction syndrome.
  • Chronic Syndrome Support Association Founded in order to educate the general population and healthcare professionals about Chronic Immunological and Neurological Disorders.
  • FM-CFS Canada “Canada’s first national fibromyalgia and CFS/ME campaign. Patient groups, medical associations, volunteers and sponsors working together.
  • HHV-6 Foundation Sponsors basic research on the role of HHV-6 in chronic fatigue syndrome and other conditions, and is supported through private donations.
  • MESS ME Support Services is a volunteer organisation based in Toronto dedicated to helping those who suffer from ME/CFS. By keeping abreast of current medical research into the condition, as well as the latest treatment strategies (both pharmaceutical and holistic), MESS strives to foster understanding of this condition and the difficulties in living with it.
  • Myalgic Encephalomyelitis Society of America “The ME Society of America is an organization that seeks to promote understanding of the disease known as myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a multi-system disease adversely affecting the heart, brain, neuroendocrine, immune, and circulatory systems. The society publicizes research and case definitions on the disease regardless of the name under which they were published.
  • National Alliance for Myalgic Encephalomyelitis “Established to address the issues of recognition and definition, and to raise awareness of this devastating neuroimmune disease that has afflicted nearly a million people in the US and millions worldwide.
  • National CFIDS Foundation “Helps fund medical research into Chronic Fatigue Immune Dysfunction Syndrome and related illnesses. The organisation is collecting signatures for a petition calling for ‘the recognition of myalgic encephalomyelitis as a serious and debilitating disease’. To sign the petition or help in its distribution, please visit the petition website.
  • National ME/FM Action Network A Canadian, registered, non-profit organisation dedicated to advancing the recognition and understanding of ME/CFS and Fibromyalgia Syndrome through education, advocacy, support and research.
  • Nightingale Research Foundation “A charitable foundation to conduct and assist research into the cause and cure of ME/CFS and to serve as an educational institution.
  • Wisconsin ME/CFS Association “Our purpose is to act as a clearinghouse for CFS information within the state of Wisconsin; to assist patients and their families; to encourage communication among agencies, institutions and concerned individuals; and to promote research on the cause, cure and ultimate prevention of chronic fatigue syndrome.

Australian and New Zealand charities and organisations

  • Alison Hunter Memorial Foundation “The Alison Hunter Memorial Foundation is a non-profit institution. The Foundation works independently in a spirit of support and cooperation with all researchers, institutions and ME/CFS societies to advance scientific knowledge and medical care. Its mission statement is to reduce the impact in the community of the disease myalgic encephalopathy/chronic fatigue syndrome.
  • ANZMES The Associated New Zealand ME Society. There is a network of support groups throughout New Zealand, and ANZMES is the national body. It is an incorporated society with its own constitution, and exists to serve existing members, assist those who are newly diagnosed, as well as help those who may only suspect they are sufferers. Its website has a range of useful information, and a range of publications is available, principally ‘Meeting Place’, the ANZMES quarterly journal for members.
  • ME/CFS Society of New South Wales “Committed to assist people who are adversely affected by ME/CFS, with special emphasis upon the people of New South Wales. Provides information and support to all who are affected by ME/CFS and related illnesses, promotes accurate awareness of ME/CFS within medical and scientific communities and the wider public, and supports research into the pathophysiology and treatment of ME/CFS.
  • ME/CFS Society of South Australia (Adelaide) “Supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members. The website has breaking local and international news.
  • ME/CFS Society of Victoria “A non-profit charitable organisation dedicated to serving the CFS community in Victoria and Tasmania.

UK information, resource and discussion sites

  • The Aerotoxic Association “We have a lot of experience helping aircrew and passengers who we believe have been made ill by exposure to contaminated aircraft cabin air. Most suffer from chronic fatigue, and we believe there are a lot of people in the general population suffering from ME/CFS whose condition is attributable to contaminated cabin air.
  • Axford’s Abode “In-depth issues and information on ME/CFS.
  • Christian Perspective on ME General information on ME, and discussions about the Christian response to the illness.
  • Chronic Fatigue Syndrome (ME) and Fibromyalgia “A discussion of strategies to deal with them.
  • Claridge House “A Quaker Healing Centre and Retreat House based in Lingfield, Surrey. The house is open to those of all faiths or none at all and offers an opportunity to rest and relax away from the cares and concerns of everyday life. We also run a programme of courses with a healing focus, a number of which have been designed for those who suffer from ME.
  • Counselling Directory “The purpose of the site is ultimately to provide the UK with a huge counselling support network, enabling those in distress to find a counsellor close to them and appropriate for their needs. This is a free, confidential service that will hopefully encourage those in distress to seek help.
  • Disabled Parents Network “A national organisation of and for disabled people who are parents or who hope to become parents, and their families, friends and supporters. Over the next year we are running a series of four consultation events for disabled parents.
  • Doctor Myhill “The information in this website is based on my experience of over twenty years in general National Health Service practice and private practice.
  • Energise For Life “Visit here to find out which foods to eat and how to live alkaline today.
  • Expert Patients Programme “Expert Patients Programme (EPP) courses are FREE and help people to improve their health and wellbeing by learning new skills to manage their condition on a daily basis. People who have already attended courses have told us it has helped them to deal with their pain, tiredness, feelings of depression, frustration and other difficulties that may come from living with a long-term condition. The Expert Patients Programme was established as a Community Interest Company (EPP CIC) on 1st April 2007, to expand the NHS Expert Patients Programme pilot which has successfully been providing lay led self-management courses within the NHS across England since 2002.
  • Family fights for ME Antoinette Christie’s site designed to raise awareness of ME. “If you know anyone with ME, be there for them, believe them and support them!
  • Fibromylagia Support Net “Free, unbiased sources of information for fibromyalgia sufferers and their carers.
  • Foggy Friends “…offer friendship, support and fun through our friendly website, forum and chat room. Everyone who is affected by ME/CFS is welcome.
  • Freedom From ME “This site features a large amount of original information and material about treating ME, with PDFs and audio downloads about nutrition, relaxation, stress, sleep and various holistic approaches which can be effective in treating ME/CFS conditions.
  • Givingallery Founded by Steve Craig, “The purpose of this Gallery is to showcase new artistic talent irrespective of style, age, training and background.
  • Hypnotherapy Directory “This site aims to provide a huge hypnotherapy support network enabling those in distress to find a hypnotherapist close to them and appropriate for their needs. This is a free, confidential service… every hypnotherapist on the site who has submitted their profile has either sent a copy of their qualifications and insurance cover to us, or is registered with a professional body with recognised codes of ethics and practice.
  • Jane’s Website This site has details of Jane’s cookbook, ‘Eat to beat fatigue’, as well as photos, paintings and some articles on home shopping and spirituality.
  • Jennie Williams This site states that, “Jennie is an experienced intuitive whose passion is to help people experience the full potential of the power of healing.
  • LDN Research Trust A charity which has much information on low dose naltrexone, and strives “to make LDN a first line treatment available for all on the NHS”.
  • Life Coach Directory “Life Coach Directory was set up to increase the awareness of life coaching and enable visitors to find the most suitable coach. Statistics reveal that two-thirds of people who visit a life coach find that they are more self-aware after having done so, and we genuinely believe that helping visitors find information about life coaching, and connecting them with the right help, can make extremely positive changes to their lives.”.
  • Lissim “A new pain relief treatment that uses a very special kind of light touch on specific points on the body that act as control switches for areas of pain.
  • LocalME “A friendly UK e-mail group for local group leaders/representatives to share news, views, information, hopes and concerns with other groups.
  • Lyme Disease “Living with chronic and autoimmune disease can be extremely frustrating. If you feel you may have lyme disease, please contact Envita so their team of experts can help guide you regarding this elusive illness.
  • MEActionUK “Our aims are to help and inform those looking for all the available facts surrounding the issues relevant to Myalgic Encephalomyelitis. We hope to effect a positive and informed change in the way sufferers are treated here in the UK.
  • MEChat “A fun, friendly and helpful national online support group for people with ME.
  • ME/CFS Counselling Survey A website for survey research into counselling and ME/CFS.
  • ME/CFS Online “A forum for people with ME/CFS to chat and share experiences.
  • ME/CFS Parents “A community for parents, parents-to-be and people considering parenthood who suffer from ME/CFS.
  • ME-CFS Treatment A site which relates Dr David Smith’s experience in treating people with ME/CFS. This site “outlines the basic guidelines for recovery” that Dr Smith has developed.
  • ME Recovery “The ME Recovery Clinic treats patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), and the range of resulting symptoms, using a comprehensive series of techniques.
  • ME Support “A friendly, informal ‘online community’ bringing awareness to chronic fatiguing illnesses. The site covers many aspects of ME and has articles, references and resources on a vast array of subjects.
  • Mywavelength.com “A site specifically designed to allow people suffering from any illness and their carers to communicate with fellow sufferers. There is a specific section devoted to ME; the site is free and all are welcome.
  • Nutritionist Resource This site aims “to provide the UK with a huge nutrition support network, enabling those in need to find a nutritionist close to them and appropriate for their needs. This is a free, confidential service that will provide those seeking support with all the information they need. Every nutritionist on the site who has submitted their profile has either sent a copy of their qualifications and insurance cover to us, or is registered with a professional body with recognised codes of ethics and practice, this way we can be assured of their professionalism.
  • Overton Studios Trust “A mission is to help sufferers to manage their condition more effectively and finally to bring it under their control.
  • Peace of Mind Care “A charity which runs a childcare recruitment agency, and fundraises for children and young people with terminal illnesses or substantial disabilities including ME, Fibromyalgia and Cerebral Palsy.
  • PRIME — Partnership for Research in CFS and ME “A collaboration between patients, carers, researchers and service providers who share a commitment to improving our understanding of ME/CFS.
  • Raising Funding “RaisingFunding was formed to offer a unique reference point on fundraising ideas, activities and regulations.
  • Reverse Therapy A site which relates to Reverse Therapy, described as “a new body-mind approach”.
  • Rosevibe CFS/ME information site designed specifically for people who have trouble focusing for too long on a white background and who prefer larger text.
  • Sheffield Yoga for ME/CFS “Runs remedial yoga classes in the Sheffield area and has some useful information on yoga applied for those with ME or CFS on the information page of their website.
  • Short Life Working Group The report of the Short Life Working Group on CFS/ME (pdf format).
  • Sophia and ME A site which tells the story of Sophia Mirza, which aims to “show how and what was done to Sophia, so that maybe through this, others will become aware of the horrors perpetrated on her and on many others suffering from this terrible disease.
  • Stitchlinks An international member-based friendship network that combines the health and community benefits of knitting and stitching with practical health information.
  • Support ME “An online resource for sufferers of ME, chronic fatigue syndrome and CFIDS. The site aims to provide information on the latest research updates from around the world.
  • Therapy Directory “We promote the benefits of complementary therapy and aim to give visitors all the information they need to help them make an informed decision about whether therapy would be right for them. The website has an FAQ section, a number of useful articles written by our members and the facility to search for a practitioner in your area. To ensure the professionalism of our website, all listed therapists have provided us with qualifications and insurance cover or proof of membership with a professional body.
  • To ME or not to ME “This group believe in not letting ME get the better of them. It is a private group, so apply to join; this is to protect its members so they can help and support those that need it. The aim is to give information on any new development in the fight against ME and have a few laughs along the way, with games, quizzes and a close family atmosphere, without the worry of the outside world interfering.
  • Understanding Severe ME An information pack produced by Cathy Saunders who suffered from severe ME before recovering to 90% functioning. The pack was written for the family and friends of severe MEsufferers, and can be ordered from her blog.
  • Vegepa for ME Scheme This scheme, organised by Lynne Kersh, offers the Vegepa and allied products at a reduced rate, and benefits ME research at the same time.
  • Vision Call “We provide free (NHS-funded) home eye tests to anyone in the UK who has ME and cannot attend their local opticians.
  • Young Action Online / Tymes Trust “A concentrated resource of solid information from creditable sources for young people with ME, their families and professionals.

International information, resource and discussion sites

  • About.com Information on CFS and fibromyalgia.
  • Arizona Fibro and Related Chronic Pain Support An MSN group devoted to fibromyalgia and chronic pain.
  • Brainfog “Keeping the lighter side of ME/CFS and life well and truly alive.
  • CFIDS/ME Information Page Information and discussion about CFIDS and ME.
  • CFIDS Report “Cutting edge news and commentary for the CFIDS community.
  • CFS Aktuell A German information portal for articles and news on ME/CFS, with translations of key articles and booklets from UK, USA and Australia by Regina Clos.
  • CFS Information International “Professionally selected news, information and research articles on ME/CFS and FM.
  • CFS Italia Forum A large community of people with CFS in Italy, with a website for information and discussion on CFS. It also has an Italian magazine about CFS and FMS which aims to be an informative reference point for Italian patients.
  • CFS-News News, information and discussion on chronic fatigue syndrome.
  • Chronic Fatigue Alliance A message board “for people with CFS, ME, fibromyalgia, and related illnesses, and their caregivers. A free, international pen pal program is also offered.
  • Chronic Fatigue Support “ProHealth’s ChronicFatigueSupport.com is your home for Chronic Fatigue Syndrome and Fibromyalgia news, support, and comprehensive nutritional solutions.
  • Co-cure “Co-operate and Communicate for a Cure. A mailing list established with the goal of furthering co-operative efforts towards finding the cure for CFS and FM.
  • DrugAlert “A comprehensive database featuring information and news alerts about potentially dangerous drugs currently on the market or previously available worldwide. The web site is dedicated to keeping the public informed about drug recalls, side effects, and pending litigation associated with various drugs and their manufacturers.
  • DrugDangersDrug Dangers is committed to providing information on a range of medications and medical devices that have serious complications.
  • DrugWatch “A comprehensive web site database featuring extensive information about thousands of different medications and drugs currently on the market or previously available worldwide.
  • An eye-opening guide to chronic fatigue syndrome A brief description of the condition, and links to other helpful resources.
  • Fibromyalgia Treatment Center “A nonprofit corporation which raises money for research into the diagnosis and treatment of fibromyalgia, and has an educative role.
  • Hummingbird’s Guide To ME/CFIDS “This site is a guide to ME/CFIDS by Jodi Bassett, who has severe ME/CFIDS and is housebound. It focuses on ‘that much neglected topic — really severe ME/CFIDS’, and contains articles and information.
  • Kronisktraethedssyndrom An information site from Denmark on ME/CFS-related issues.
  • Listening to CFIDS “The voices of persons with chronic fatigue and immune dysfunction syndrome.
  • MCS-Canada “This health group was formed to assist patients and concerned parties from all nationalities learn to cope with enviromental injury plus disorders such as MCS, ME, CFS, FM, Lyme, Lupus, GWS and PPS, as well as related and associated illnesses.
  • ME/CFS Helpful Hints “This website contains a collection of practical hints for those suffering from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), including information on services and resources, with contact details to support and assist sufferers, their carers, families, friends, and health care practitioners.
  • ME/CVS Documentatiecentrum This is an information site on ME/CFS which started in 2004. In Dutch, with a search facility.
  • Med School Worldwide medical schools and colleges directory.
  • MESite An independent website maintained by an editor, author, counsellor and consultant in International ME matters (English and Danish versions).
  • Mind-Body-Health “Research and information about CFS/ME from a recovered patient, including theories about how the mind interacts with the immune system and the body’s hormone rhythms.
  • Phoenix Rising “Substantive overviews of all the major ME/CFS research areas, interviews with authors, researchers, physicians and advocates, a treatment section, ME/CFS stories, resources, advocacy reports, the free monthly Phoenix Rising newsletter which features news on the latest ME/CFS research and more.World’s CFIDS OrganizationA website “created to help 30 million CFIDS patients with treatment of this disease”.

General medical information

  • Centers for Disease Control and Prevention Offers information about CFS/ME and its diagnosis and treatment, and provides some key papers.
  • Expert Patients Programme (EPP) An NHS-based training programme that provides opportunities to people who live with long-term chronic conditions to develop new skills to manage their condition better on a day-to-day basis.
  • Merck Manual of Diagnosis and Therapy (Seventeenth Edition Centennial Edition) Merck provides all of The Merck Manuals on a not-for-profit basis as a service to the community, and the publication is searchable.
  • NHS Direct Online A site with information on illnesses, treatments and advice (England).
  • NHS 24 “Round the clock health advice and support” (Scotland).
  • PubMed A text-based search and retrieval system providing access to citations from biomedical literature.

Social care information

General information

  • ME Assocation (Helpline 0870 444 1836) Has a varied selection of information, including a section on accessing welfare benefits.
  • Action for ME (0845 123 2380) Produces a range of information sheets, including a guide to benefits, and welfare rights information.
  • Adviceguide The main public information service of Citizens Advice, providing information on rights — including benefits, housing and employment, and on debt, consumer and legal issues.
  • Department for Work and Pensions (Formerly Department of Social Security) Guide to services and benefits.
  • In Control A national programme to change the organisation of social care in England so that people who need support can take more control of their own lives and fulfil their role as citizens.
  • Rightsnet The welfare rights website providing access to the most up-to-date welfare benefit and tax credit information.

Information for Carers

Disability Support Sites