ME Research UK — Energising ME Research

UK information, resource and discussion sites

These links are for information only, and ME Research UK does not necessarily endorse their contents. If you would like your organisation listed here, please contact us.

Axford’s Abode
“In-depth issues and information on ME/CFS.”
Christian Perspective on ME
General information on ME, and discussions about the Christian response to the illness.
Chronic Fatigue Syndrome (ME) and Fibromyalgia
“A discussion of strategies to deal with them.”
Claridge House
“A Quaker Healing Centre and Retreat House based in Lingfield, Surrey. The house is open to those of all faiths or none at all and offers an opportunity to rest and relax away from the cares and concerns of everyday life. We also run a programme of courses with a healing focus, a number of which have been designed for those who suffer from ME.”
Diary Of An ME Sufferer
“I’ve decided to start an ME diary; I think it should help me, as I can see my highs and lows; it will help other ME sufferers not feel as though they are so different…”
Disabled Parents Network
“A national organisation of and for disabled people who are parents or who hope to become parents, and their families, friends and supporters. Over the next year we are running a series of four consultation events for disabled parents.”
Doctor Myhill
“The information in this website is based on my experience of over twenty years in general National Health Service practice and private practice.”
Energy Meltdown
Showcase your talents, cheery creativity or favourite photos… Whatever you do, large or small, there’s probably a place for it on this funky website.
European Disability Parking Card Directory
Information on disability parking issues, and advice on claiming parking rights in the UK and Europe via the Blue Badge Scheme and Disability Parking Card programmes.
Family fights for ME
Antoinette Christie’s site designed to raise awareness of ME. “If you know anyone with ME, be there for them, believe them and support them!”
Female Fettle
A discussion forum for women with ME/CFS, although men are welcome too.
Fibro/CFS Foothold
“A million stories untold. Imagine having to tell that story not just once but over and over again. I’d like to attempt to tell at least some of their real stories…”
Fibromylagia Support Net
“Free, unbiased sources of information for fibromyalgia sufferers and their carers.”
Fighting ME
Hannah Butterworth has lived with ME on and off for the past 13 years. Her website “covers what it’s really like to live with a chronic illness”.
FMS, HMS and CFS HISS Community Website
A free online community website specifically designed for people suffering from fibromyalgia, hypermobility syndrome and CFS/ME.
Foggy Friends
“…offer friendship, support and fun through our friendly website, forum and chat room. Everyone who is affected by ME/CFS is welcome.”
Freedom From ME
“This site features a large amount of original information and material about treating ME, with PDFs and audio downloads about nutrition, relaxation, stress, sleep and various holistic approaches which can be effective in treating ME/CFS conditions.”
FreeMEuk
“An online forum for people with ME/CFS and their carers for discussing all ME related issues, sharing information and experience, and raising the profile of ME/CFS sufferers.”
Gary Frankum
“A top speedway rider before he was struck down with ME, Gary now campaigns to have the illness more widely accepted.”
Givingallery
Founded by Steve Craig, “The purpose of this Gallery is to showcase new artistic talent irrespective of style, age, training and background.”
Healing Retreats for People with ME
“Combining healing and a holiday to form a gentle journey into ourselves, Nomi Sharron leads healing retreats in the United Kingdom, Portugal and Israel. These retreats explore the physical, emotional and spiritual aspects of our ME.”
Healthy Me
“The way to take giant strides towards better health is by taking small steps everyday. In this site you will find all you need to know about those baby steps, along with products and health services to help you on your way.”
IMEGA-e
“The IMEGA-e group consists of over 130 ME/CFS support group and charity officers around the UK who share news and information. To apply for membership, e-mail colin.sussexme@btinternet.com or joe.sussexme@btopenworld.com.”
Island Of Fog
“Created in response to the needs of ME/CFS sufferers who are over 18. It is here to provide mutual support, fun, caring and a place where we can discuss anything.”
Jane’s Website
This site has details of Jane’s cookbook, ‘Eat to beat fatigue’, as well as photos, paintings and some articles on home shopping and spirituality.
Jennie Williams
This site states that, “Jennie is an experienced intuitive whose passion is to help people experience the full potential of the power of healing.”
Kent And Sussex Alternative ME
“A site to let you know who is out there fighting for our rights, and our right to know the truth, if you have been diagnosed with ME/CFS, then world wide research shows that you have a neurological disease not a psychological disease.”
Lissim
“A new pain relief treatment that uses a very special kind of light touch on specific points on the body that act as control switches for areas of pain.”
LocalME
“A friendly UK e-mail group for local group leaders/representatives to share news, views, information, hopes and concerns with other groups.”
MEActionUK
“Our aims are to help and inform those looking for all the available facts surrounding the issues relevant to Myalgic Encephalomyelitis. We hope to effect a positive and informed change in the way sufferers are treated here in the UK.”
MEChat
“A fun, friendly and helpful national online support group for people with ME.”
ME/CFS Counselling Survey
A website for survey research into counselling and ME/CFS.
ME, CFS, FMS and infections
“An internet discussion group with the purpose of highlighting the need for patients with ME/CFS/FMS to make sure they are adequately tested for hidden infections, in particular Borreliosis/Lyme Disease.”
ME/CFS Online
“A forum for people with ME/CFS to chat and share experiences.”
ME/CFS Parents
“A community for parents, parents-to-be and people considering parenthood who suffer from ME/CFS.”
ME-CFS Treatment
A site which relates Dr David Smith’s experience in treating people with ME/CFS, linked to ME/CFS Recovery which is for patients and carers. This site “outlines the basic guidelines for recovery” that Dr Smith has developed.
ME Connection
“Offers a new and exciting service, which enables people with ME/CFS, their family, friends and carers to get in touch with like-minded people.”
MEED
ME in Eden District was created by an ME sufferer living in Penrith who hopes that this website will provide much needed information, especially for those newly diagnosed with the disease.
ME Fatigue
Gwyneth Hopkins’ personal website on her experiences of living with and recovering from ME.
ME Support
“A friendly, informal ‘online community’ bringing awareness to chronic fatiguing illnesses. The site covers many aspects of ME and has articles, references and resources on a vast array of subjects.”
Mickel Reverse Therapy
A site which relates to Reverse Therapy, described as a “new body-mind approach to healing”.
Mywavelength.com
“A site specifically designed to allow people suffering from any illness and their carers to communicate with fellow sufferers. There is a specific section devoted to ME; the site is free and all are welcome.”
Network ME
“Provides telephone support, information and advice which helps to alleviate suffering and feelings of isolation, and helps sufferers obtain recognition and serious treatment.”
Overton Studios Trust
“A mission is to help sufferers to manage their condition more effectively and finally to bring it under their control.”
PRIME — Partnership for Research in CFS and ME
“A collaboration between patients, carers, researchers and service providers who share a commitment to improving our understanding of ME/CFS.”
Raising Funding
“RaisingFunding was formed to offer a unique reference point on fundraising ideas, activities and regulations.”
Reflections
Reflections… an appropriate title to explain the journey of poetry contained within this website. The poems are rotated every month; sometimes they are all about one theme, but usually they have mixed topics. Some are short pieces, whereas others can be much longer.
Reverse Therapy
A site which relates to Reverse Therapy, described as “a new body-mind approach”.
Rosevibe
CFS/ME information site designed specifically for people who have trouble focusing for too long on a white background and who prefer larger text.
Sacred Space
“Elizabeth Bailey has experienced nearly every aspect of Chronic Fatigue Syndrome: patient, carer and healer. Sacred Space (ISBN 9781 4259 82041) is an enlightening guide book in which the author and Reiki healer shares her unique story and shows you how to approach your personal journey of recovery in a very positive way.”
Satori-5
An information and resource site covering ME/CFS, Multiple Chemical Sensitivity, Toxicant Induced Loss of Tolerance, Hazardous Radiations Sickness and the best in alternative health.
Sheffield Yoga for ME/CFS
“Runs remedial yoga classes in the Sheffield area and has some useful information on yoga applied for those with ME or CFS on the information page of their website.”
Still point meditation
Online articles, information and resources for meditators and Buddhists with ME/CFS or other chronic illnesses.
Stitchlinks
An international member-based friendship network that combines the health and community benefits of knitting and stitching with practical health information.
Support ME
“An online resource for sufferers of ME, chronic fatigue syndrome and CFIDS. The site aims to provide information on the latest research updates from around the world.”
Vegepa for ME Scheme
This scheme, organised by Lynne Kersh, offers the Vegepa and allied products at a reduced rate, and benefits ME research at the same time.
Young Action Online / Tymes Trust
“A concentrated resource of solid information from creditable sources for young people with ME, their families and professionals.”