American and Canadian charities and organisations
These links are for information only, and ME Research UK does not necessarily endorse their contents. If you would like your organisation listed here, please contact us.
- CFIDS Association of America
- “
The nation’s leading charitable organization dedicated to conquering chronic fatigue and immune dysfunction syndrome.
” - Chronic Syndrome Support Association
- Founded in order to educate the general population and healthcare professionals about Chronic Immunological and Neurological Disorders.
- FM-CFS Canada
- “
Canada’s first national fibromyalgia and CFS/ME campaign. Patient groups, medical associations, volunteers and sponsors working together.
” - HHV-6 Foundation
- Sponsors basic research on the role of HHV-6 in chronic fatigue syndrome and other conditions, and is supported through private donations.
- International Association for Chronic Fatigue Syndrome
- “
A non-profit organization of research scientists, physicians, licensed medical healthcare professionals, and other individuals and institutions interested in promoting the stimulation, coordination, and exchange of ideas for CFS and Fibromyalgia research and patient care.
” - MESS
- ME Support Services is a volunteer organization based in Toronto dedicated to helping those who suffer from ME/CFS. By keeping abreast of current medical research into the condition, as well as the latest treatment strategies (both pharmaceutical and holistic), MESS strives to foster understanding of this condition and the difficulties in living with it.
- Mothers Against Myalgic Encephalomyelitis (MAME, Inc.)
- “
Founded in 1999 as a vehicle for promoting awareness and education about Myalgic Encephalomyelitis, enlisting the support of well family and community members through volunteerism. The president and founder, Jean Harrison, presides over a newly reconstituted board comprised of both patients and non-patients.
” - Myalgic Encephalomyelitis Society of America
- “
The ME Society of America is an organization that seeks to promote understanding of the disease known as myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a multi-system disease adversely affecting the heart, brain, neuroendocrine, immune, and circulatory systems. The society publicizes research and case definitions on the disease regardless of the name under which they were published.
” - National Alliance for Myalgic Encephalomyelitis
- “
Established to address the issues of recognition and definition, and to raise awareness of this devastating neuroimmune disease that has afflicted nearly a million people in the US and millions worldwide.
” - National CFIDS Foundation
- “
Helps fund medical research into Chronic Fatigue Immune Dysfunction Syndrome and related illnesses. The organisation is collecting signatures for a petition calling for ‘the recognition of myalgic encephalomyelitis as a serious and debilitating disease’. To sign the petition or help in its distribution, please visit the petition website.
” - National ME/FM Action Network
- A Canadian, registered, non-profit organisation dedicated to advancing the recognition and understanding of ME/CFS and Fibromyalgia Syndrome through education, advocacy, support and research.
- Nightingale Research Foundation
- “
A charitable foundation to conduct and assist research into the cause and cure of ME/CFS and to serve as an educational institution.
” - Wisconsin CFS Association
- “
Our purpose is to act as a clearinghouse for CFS information within the state of Wisconsin; to assist patients and their families; to encourage communication among agencies, institutions and concerned individuals; and to promote research on the cause, cure and ultimate prevention of chronic fatigue syndrome.
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