UK charities and organisations
These links are for information only, and ME Research UK does not necessarily endorse their contents. If you would like your organisation listed here, please contact us.
- Action for ME
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A national charity campaigning to improve the lives of people with ME in the UK.
” - Association of Young People with ME
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A UK-based, independent, registered charity dedicated to giving help, friendship, support and vital contact to children and young people with ME.
” - Blue Ribbon for the Awareness of ME
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Publicises and creates awareness of ME and its consequences.
” - Case History Research on Myalgic Encephalomyelitis
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A registered charity set up to identify as many severely disabled ME sufferers as possible in the UK and to monitor the course of their illness over a period of ten years.
” - CFS Research Foundation
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The CFS Research Foundation was officially launched in 1993 to bring together the best minds to meet the challenge presented by chronic fatigue syndrome, encouraging basic research into the body mechanisms that lead to and continue the illness.
” - Falcon Academy
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This is a newly established not-for-profit organisation which has been created to provide an education (including social well-being development) for those who have CFS/ME. It has a special focus on those with moderate to severe forms of the condition, and initially we will be looking at providing education for those in the 17–25 age group.
” - FOR ME
- Fund for Osteopathic Research into Myalgic Encephalomyelitis. “
Dedicated to helping osteopathic research into chronic fatigue syndrome (CFS/ME) also known in the USA as CFIDS. FORME has funded research for the past 9 years that has led to the scientific support of The Perrin Technique™.
” - Invest In ME
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We are an independent group campaigning for biomedical research into Myalgic Encephalomyelitis (ME), as defined by WHO-ICD-10-G93.3. Our aim is to bring together like-minded individuals and groups to campaign for research.
” See also Have A Cuppa For ME. - ME Association
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Aims to support, to help, to inform and to empower all those whose lives are affected by ME/CFS.
” - Meach Trust (ME Accommodation and Care Homes)
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A charity whose aim is to raise sufficient funds to open the first specialised residential care home for those with severe or chronic ME.
” For more details, visit the website, e-mail info@meach.org.uk, write to the Trust at 29 Turnpike Way, Ashington, W Sussex RH20 3QG or telephone 01903 891386 (before 7pm). - ME Northeast
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A regional charity for an area from the Scottish borders to North Yorkshire.
” - National ME Centre
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Provides a unique blend of help, care and support to sufferers and their families: The Centre offers a fully integrated service for the management of this complex illness. This includes, and is dependent upon, the skills of professional clinicians and therapists as well as volunteer support workers, many of whom have themselves experience of ME.
” - Network ME
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Provides telephone support, information and advice which helps to alleviate suffering and feelings of isolation, and helps sufferers obtain recognition and serious treatment.
” - A Place For ME
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Our purpose is to provide adapted housing and specialist care to those with ME. We hope to set up households of four people with severe ME to support one another and share resources. A Housing Association will provide a house with sound-proofed bed-sitting rooms, air-conditioning and wheelchair adaptions. Two live-in carers, from the ME Care agency, will supply 10 hours of care to the household each day.
” - RiME — Research into Myalgic Encephalomyelitis
- Campaigns nationally for research into the underlying physical causes and disease processes of ME. RiME publishes a Newsletter twice a year, usually in spring and autumn. All past issues are available here as individual RTF files. The organisation’s latest project is to do with the All Party Parliamentary Group on ME.
- Search ME
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A young charity which has made its mark locally and now plans to hit a wider audience in 2005. Its goal is to raise a number of issues to help illustrate the problems that many thousands of people suffering from ME experience on a daily basis and to tell you how you can help us to help them.
” - 25% ME Group
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Support for severely affected ME sufferers, the 25% of sufferers who remain long term ill and disabled by the disease.
” - Welsh Association of ME and CFS Support
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An umbrella body set up in April 2001 with the aim of giving a united voice to ME and CFS sufferers in Wales.
” - Young Action Online / Tymes Trust
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A concentrated resource of solid information from creditable sources for young people with ME, their families and professionals.
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