European charities and organisations
These links are for information only, and ME Research UK does not necessarily endorse their contents. If you would like your organisation listed here, please contact us.
- Association Francaise du Syndrome de Fatigue Chronique et de Fibromyalgie
- French CFS association (in French).
- Associazione Italiana Sindrome da Stanchezza Cronica
- Italian CFS association (in Italian).
- Danish ME/CFS Association
- “
ME/CFS Foreningen is the Danish ME/CFS Association. It was founded in 1992 and counts almost 500 members today. The purpose of the association is to provide factual information about ME/CFS to patients, families, health care professionals, and social authorities, and to offer support for patients and their families. The association offers: A magazine published 4 times a year; Research and coping information about ME/CFS; Information for doctors; Local support groups; Patient advisors and diet advisor; Legal advisors; and a child and youth group.
” - Fatigatio eV
- German ME/CFS association (in German). Bundesverband Chronisches Erschöpfungssyndrom is a large independent organisation repesenting people with ME/CFS in Germany.
- Irish ME/CFS Support Group
- This organisation has more than 400 members nationwide. It has regular meetings, often with guest speakers, in Dublin, organises a telephone network list, and produces a 30-page quarterly newsletter. It is involved in helping set up support groups around Ireland — currently there are four. The group is currently concentrating on raising money for research and raising awareness of the condition. Write to: PO Box 3075, Dublin 2. Tel: (01) 2350965. Fax: (01) 4968360. E-mail: info@irishmecfs.org.
- Irish ME Trust
- “
The Irish ME Trust provides information and support to suffers of ME and CFS in Ireland, employing a qualified counsellor with an in-depth knowledge of ME. As well as arranging meetings for members around the country, it supports members’ applications for government department benefits, and continues to lobby Government agencies for proper recognition of the illness and the establishment of a definitive clinic for diagnosis and treatment. The group feels strongly that ME patients need to see biomedical research into their condition, as well as the social and community care support that they deserve.
” - ME Fonds
- Dutch CFS organisation (in Dutch).
- ME Platform
- Dutch CFS organisation (in Dutch).
- ME Sufferers (Malta)
- “
A Maltese website that aims to inform people about the illness which is highly unrecognised in Malta. We also offer support to all ME sufferers, their families, friends and carers through our email support group.
” - Norwegian ME Association
- “
The Norwegian ME Association, Norges Myalgisk Encefalopati Forening, was founded in 1987. At the end of 2003 we counted 743 members from all over the country. We have an office in Oslo, centrally located behind the university and close to the palace, and have established ‘self-help’ groups in many counties. Every other week we have ‘open house’ for members or anyone who wants to talk to us, get more information or buy books on the subject (only in English). We provide factual information about ME to lay and health professionals, help and support people with ME and their families and carers, and produce a magazine and newsletter.
”
