ME Research UK — Energising ME Research

Information on the experiences of people with ME/CFS

Living with Severe Myalgic Encephalomyelitis. A DVD presentation by Linda Crowhurst produced by the 25% ME group showing her harrowing experiences of living with severe ME.
Watch the presentation
Support for Severely Affected ME Sufferers: Information for General Practitioners and Clinicians. Greg Crowhurst RNMH PG Dip Cert Counselling MA (25% ME Group Secretary).
Read the document
A survey of the experiences of house/bed bound members of the 25% ME Group.
Read the survey
Severely Neglected. A report by Action for ME on examining the experiences of severely ill people in accessing health and social care.
Read the report (pdf 155 KB)
Living with ME. Association of Young People with ME. A survey of 445 young people asked for their opinions and experiences.
Read the survey
Faces of CFS — Case Histories of Chronic Fatigue Syndrome. Collated and discussed by Dr David Bell, Lyndonville, New York.
Read the article