Information on the experiences of people with ME/CFS
- Living with Severe Myalgic Encephalomyelitis. A DVD presentation by Linda Crowhurst produced by the 25% ME group showing her harrowing experiences of living with severe ME.
- Watch the presentation
- Support for Severely Affected ME Sufferers: Information for General Practitioners and Clinicians. Greg Crowhurst RNMH PG Dip Cert Counselling MA (25% ME Group Secretary).
- Read the document
- A survey of the experiences of house/bed bound members of the 25% ME Group.
- Read the survey
- Severely Neglected. A report by Action for ME on examining the experiences of severely ill people in accessing health and social care.
- Read the report (pdf 155 KB)
- Living with ME. Association of Young People with ME. A survey of 445 young people asked for their opinions and experiences.
- Read the survey
- Faces of CFS — Case Histories of Chronic Fatigue Syndrome. Collated and discussed by Dr David Bell, Lyndonville, New York.
- Read the article