Forward ME Group Minutes

Posted on 7 Jan 2017

Minutes of the Meeting held in the Television Interview Room, House of Lords, Wednesday 7 December 2016, 2.00 pm Present: Countess of Mar (Chairman); Janice and Bill Kent (reMEmber); Hannah Clifton (ME Trust); Jane Colby (TYMES Trust); Christine Harrison (BRAME); Clare Ogden (AFME); Dr Charles Shepherd (ME Association) and Sue Waddle (ME Research UK). Apologies had been received from Sonya Chowdhury (AFME), Dr Paul Worthley (ME Trust) and Cath...

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Genetic variation affects adrenergic receptors

Posted on 7 Dec 2016

Given the estimated 20,000 genes that determine the characteristics of human beings (and make up the human genome), identifying those that may be responsible for the development of ME/CFS is a challenge. But the task can be simplified by first considering the symptoms of the disease, and then targeting the search to those genes known to be involved in the underlying processes (for example, the nerve dysfunction that causes difficulties in...

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MEGA research website

Posted on 30 Nov 2016

The ME/CFS Epidemiology and Genomics Alliance (MEGA) has constructed a new website, which went live today. It contains information on the background and aims of the MEGA project, and has a Question and  Answer section (which is also pasted below). Importantly, the website also contains draft terms of reference for the Patient Advisory Group, and invites applications from people wishing to join the group; these can be people with ME/CFS, their...

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Forward ME Group Minutes

Posted on 25 Nov 2016

Minutes of the Meeting held in the Television Interview Room, House of Lords, Tuesday 25 October 2016, 2.00 pm Present: Countess of Mar (Chairman); Janice and Bill Kent (reMEmber); Jane Colby (TYMES); Anita Williams (TYMES); Christine Harrison (BRAME); Dr Charles Shepherd (ME Association); Dr Paul Worthley (ME Trust); Sue Waddle (ME Research UK); Cath Ross (25% ME Group) and Katie McMahon (AFME). Apologies had been received from Sonya Chowdhury...

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Virgin Money London Marathon 2017

Posted on 16 Nov 2016

Following an open competition to choose a runner to fill ME Research UK’s guaranteed charity place in the 2017 Virgin Money London Marathon, supporter Tom Whittingham has been picked to wear bib number 55102. The Virgin Money London Marathon is the largest annual fundraising event on the planet – runners have raised over £750 million for good causes since the race began in 1981. On being informed of his success, Tom said, “I am so...

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NEW STUDY – Genetic marker detection

Posted on 6 Nov 2016

Prof Brett Lidbury and colleagues at the John Curtin School of Medical Research, Australian National University in Canberra are conducting an ongoing programme, funded by charities in Australia, which aims to find biomarkers for ME/CFS using a range of sources – bioinformatics, genetics and pathological testing. ME Research UK has provided funding to the group to acquire additional genetic data using DNA pooling. It will then be possible to...

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