Forward ME Group Minutes – 17th October 2017

Posted on 23 Nov 2017

Minutes of the Meeting held in Residence 2, House of Lords, Tuesday 17 October 2017, 2.00 pm Present: Countess of Mar (Chairman); Janice & Bill Kent (reMEmber); Hannah Clifton (ME Trust); Jane Colby & Anita Williams (TYMES Trust); Tony Crouch (representing 25% Group and TYMES Trust); Clare Ogden (Action for ME); Dr Charles Shepherd (ME Association); and Dr Paul Worthley (ME Trust). In attendance: Dr Max Davie (Paediatrician)....

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Inside Out

Posted on 27 Sep 2017

We are very pleased to announce that ME Research has awarded a new research grant to Prof. Yan Yiannakou of Newcastle upon Tyne Hospitals NHS Foundation Trust. ME/CFS is relatively common among patients with irritable bowel syndrome (IBS), and the two conditions share a number of similarities which suggest they might be linked. The team will explore this association by looking at changes in immune activation and the gut microbiome in patients...

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NICE CFS/ME guideline to be updated

Posted on 20 Sep 2017

The following is an updated version of an article written for the autumn 2017 issue of Breakthrough magazine. As you will see, recent developments mean that the story now has a potentially happier ending. The National Institute for Health and Care Excellence (NICE) announced on 20th September 2017 that it is planning a full update of its guideline on the diagnosis and management of CFS/ME. ME Research UK is delighted with this news because we...

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Dr Gordon Parish – an appreciation

Posted on 15 Sep 2017

It is with great sadness that we learned of the death of Dr J. Gordon Parish, aged 92, on September 13th at his home in the village of Stanley in rural Perthshire. Dr Parish was one of the group of trustees who founded ME Research UK (originally called MERGE) in 2000, becoming a valued patron thereafter. Without his intellectual and financial support, particularly in the very early days, the charity would not have survived and prospered. He was...

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Forward ME Group Minutes – 11th July 2017

Posted on 23 Aug 2017

Minutes of the meeting held at House of Lords, Tuesday 11th July 2017, 2pm Present: Countess of Mar (Chairman); Janice and Bill Kent (reMEmber); Dr Charles Shepherd (ME Association); Clare Ogden (AFME); Jane Colby (TYMES); Tony Crouch (representing the 25% Group and TYMES Trust); Christine Harrison (BRAME); and Sue Waddle (ME Research UK). In Attendance: Professor Diane O’Leary, Kennedy Institute of Ethics, Georgetown University, Washington DC....

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Forward ME Group Minutes – 22nd June 2017

Posted on 25 Jul 2017

Minutes of the meeting held in the Television Interview Room, House of Lords, Thursday 22 June 2017, 10am Present: Countess of Mar (Chairman); Dr Charles Shepherd (ME Association); Bill & Janice Kent (reMEmber); Tony Crouch (representing 25% Group and TYMES) and Clare Ogden (AFME). In Attendance: Professor Kamila Hawthorne and Fiona Erasmus (Royal College of General Practitioners). Apologies had been received from Sue Waddle (MERUK), Cath...

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