NICE Guideline Review – Stakeholder Workshop Jan 2018

Posted on 18 Jan 2018

On 20th September 2017, NICE announced that following a stakeholder consultation on its plan not to update the 2007 guideline ‘Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy: diagnosis and management’ (CG53), “broader issues with the guideline were highlighted that called into question the guideline scope and its current relevance. After further consideration of information from stakeholders including new evidence (see...

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Forward ME Group Minutes – 5th December 2017

Posted on 16 Jan 2018

Minutes of the Meeting held in Residence 2, House of Lords, Tuesday 5 December 2017, 2.00 pm Present: Countess of Mar (Chairman); Janice & Bill Kent (reMEmber); Clare Ogden (AFME); Dr Charles Shepherd (ME Association) and Tony Crouch (representing 25% Group and TYMES Trust). In attendance: Kathryn Pugh MBE, Deputy Head of Mental Health, Children and Young People’s Mental Health Programme, NHS England. Apologies had been received from Dr...

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Breakthrough Autumn 2017

Posted on 7 Dec 2017

The electronic version of our Autumn 2017 Breakthrough magazine is now online. Download a pdf or read it online. The contents include ME Research UK-funded research on the role of autoantibodies in ME/CFS, and AMPK activation; short items on the NICE guideline, treatment delivery, and our call for new trustees; and many shorter ‘research bites’. The magazine is free to patients and their families, clinics, academics and research...

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Forward ME Group Minutes – 31st October 2017

Posted on 5 Dec 2017

Minutes of the Meeting held in Residence 2, House of Lords, Tuesday 31 October 2017, 1.30 pm Present: Countess of Mar (Chairman); Janice & Bill Kent (reMEmber); Christine Harrison (BRAME); Hannah Clifton & Gareth Tucker (ME Trust); Jane Colby & Anita Williams (TYMES Trust); Tony Crouch (representing 25% Group and TYMES Trust); Clare Ogden (Action for ME); Dr Charles Shepherd (ME Association); Professor Malcolm Hooper; Dr Nigel...

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The Power Lines

Posted on 30 Nov 2017

An ME Research UK-funded project looks at abnormalities in energy-producing pathways within the mitochondria in people with ME/CFS. Read more here

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Forward ME Group Minutes – 17th October 2017

Posted on 23 Nov 2017

Minutes of the Meeting held in Residence 2, House of Lords, Tuesday 17 October 2017, 2.00 pm Present: Countess of Mar (Chairman); Janice & Bill Kent (reMEmber); Hannah Clifton (ME Trust); Jane Colby & Anita Williams (TYMES Trust); Tony Crouch (representing 25% Group and TYMES Trust); Clare Ogden (Action for ME); Dr Charles Shepherd (ME Association); and Dr Paul Worthley (ME Trust). In attendance: Dr Max Davie (Paediatrician)....

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