The Big Hurt

Posted on 15 Feb 2018

Prof. Jo Nijs and colleagues in Brussels have recently published results from an ME Research UK-funded project looking at cerebral blood flow and heart rate variability, and whether they relate to pain following exercise in ME/CFS. Read more here

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Forward ME Group Minutes – 10th January 2018

Posted on 12 Feb 2018

Minutes of the meeting held  in Residence 2, House of Lords, Wednesday 10 January 2018 starting 2pm Present: Countess of Mar (Chairman); Dr Charles Shepherd (ME Association); Bill Kent (reMEmber); Tony Crouch (representing 25% Group); Jane Colby and Anita Williams (TYMES); Clare Ogden (AFME); Hannah Clifton and Dr Paul Worthley (ME Trust); and Dr Willy Weir. Apologies had been received from Sue Waddle (MERUK), Christine Harrison (BRAME) and...

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Fill Your Heart

Posted on 9 Feb 2018

Prof. Julia Newton’s team in Newcastle University has recently published a paper looking at BNP levels and cardiac dysfunction in patients with ME/CFS. These results are from a study, co-funded by ME Research UK, which builds on their previous findings of heart abnormalities in people with the illness. Read more here

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NICE Guideline Review – Stakeholder Workshop Jan 2018

Posted on 18 Jan 2018

On 20th September 2017, NICE announced that following a stakeholder consultation on its plan not to update the 2007 guideline ‘Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy: diagnosis and management’ (CG53), “broader issues with the guideline were highlighted that called into question the guideline scope and its current relevance. After further consideration of information from stakeholders including new evidence (see...

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Forward ME Group Minutes – 5th December 2017

Posted on 16 Jan 2018

Minutes of the Meeting held in Residence 2, House of Lords, Tuesday 5 December 2017, 2.00 pm Present: Countess of Mar (Chairman); Janice & Bill Kent (reMEmber); Clare Ogden (AFME); Dr Charles Shepherd (ME Association) and Tony Crouch (representing 25% Group and TYMES Trust). In attendance: Kathryn Pugh MBE, Deputy Head of Mental Health, Children and Young People’s Mental Health Programme, NHS England. Apologies had been received from Dr...

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Breakthrough Autumn 2017

Posted on 7 Dec 2017

The electronic version of our Autumn 2017 Breakthrough magazine is now online. Download a pdf or read it online. The contents include ME Research UK-funded research on the role of autoantibodies in ME/CFS, and AMPK activation; short items on the NICE guideline, treatment delivery, and our call for new trustees; and many shorter ‘research bites’. The magazine is free to patients and their families, clinics, academics and research...

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