Experiences of post-infectious fatigue syndrome

Posted on 17 Apr 2017

As scientists, it is very easy for us to focus on the biological details of an illness like ME/CFS and forget about the patients themselves. Hence the value of studies such as that by Eva Stormorken at the University of Oslo and Prof. Leonard Jason at DePaul University in Chicago, who in 2015 looked at the experiences of patients with post-infectious fatigue syndrome (PIFS). PIFS can be considered a subtype of ME/CFS where symptoms develop...

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CMRC Minutes March 2017

Posted on 10 Apr 2017

The UK ME/CFS Research Collaborative (CMRC) held a board meeting on 21st March 2017 to discuss relevant issues, such as plans for an autumn 2017 conference, MEGA study and research matters. The draft Minutes are provided below. Launched in 2013 (see our overview of the event), the aim of the CMRC is to promote the highest quality of basic and applied evidenced-based and peer reviewed research into ME/CFS by bringing together national agencies,...

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Signature Move

Posted on 5 Apr 2017

We are delighted to announce that ME Research UK has awarded a new research grant to Prof. David Patrick at the University of British Columbia. As a new randomised trial in Norway investigates the potential of rituximab as a treatment for ME/CFS, Prof. Patrick and his team plan to use samples from that trial in developing an immunosignature to identify those patients most likely to benefit from the drug. This is important because rituximab is...

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Updated MEGA Website

Posted on 30 Mar 2017

The ME/CFS Epidemiology and Genomics Alliance (MEGA) has updated its website to prove a new blog on the topic ‘Our latest funding application and Patient Advisory Group update’ and additional Q&As have been posted. MEGA was established following a Grand Challenge workshop convened by the UK ME/CFS Research Collaborative (CMRC) in May 2016 (read the report), and was launched at 2016 CMRC conference in Newcastle. A full report on...

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Forward ME Group Minutes

Posted on 7 Mar 2017

Minutes of the Meeting held in the Television Interview Room, House of Lords, Tuesday 7 February 2017, 2pm Present: Countess of Mar (Chairman); Janice and Bill Kent (reMEmber); Dr Charles Shepherd (ME Association); Clare Ogden (AFME) and Tony Crouch (representing the 25% Group and TYMES Trust). Apologies had been received from  Sue Waddle (ME Research UK), Christine Harrison (BRAME), Hannah Clifton (ME Trust), Jane Colby (Thymes Trust) and Cath...

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CMRC Conference 2016

Posted on 1 Mar 2017

The 92-page official report of the third UK ME/CFS Research Collaborative (CMRC) scientific conference has been finalised, and can be downloaded as a pdf from Action for ME’s website. The conference was held in Newcastle on 28th and 29th September 2016, and was attended by more than 90 scientists and people affected by ME/CFS. ME Research UK was represented by our Chairman, Dr Vance Spence and Vice-Chair, Mrs Sue Waddell at the event. The...

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