Breakthrough Spring 2018

Posted on 11 May 2018

The electronic version of our Spring 2018 Breakthrough magazine is now online. Download a pdf or read it online. The contents include ME Research UK-funded research on cardiac abnormalities in ME/CFS, and the role of cerebral blood flow and heart rate variability; short items on the Unrest documentary, lightning process, and and NICE guideline; and many shorter ‘research bites’. The magazine is free to patients and their families,...

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Forward-ME Group Minutes – 28th March 2018

Posted on 27 Apr 2018

Notes of Meeting Held on 28th March 2018 Present: Countess of Mar (Chairman); Carol Monaghan MP; Dr William Weir; Dr Charles Shepherd (ME Association); Jane Colby (Tymes Trust); Sarah Reed (#MEAction); and Clare Ogden (Action for ME). Apologies: Hannah Clifton, Dr Paul Worthley and Dr Gareth Tuckwell (ME Trust); Bill and Janice Kent (ReMEmber); Cath Ross and Tony Crouch (25% ME Group); and Christine & Tanya Harrison (BRAME). Science Media...

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Forward-ME Group Letter – Science Media Group

Posted on 5 Apr 2018

Forward-ME Group Letter Forward-ME Group Chair, The Countess of Mar, has written on behalf of the members of the Group to the Chief Executive of the Science Media Centre asking for the SMC “to retract and replace your factsheet on CFS/ME, published on 21 March 2018”. The letter continues that the factsheet, entitled “CFS/ME – The illness and the controversy” “……. includes numerous inaccuracies and distortions; it denigrates patients and some...

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Forward ME Group – Bodily Stress Syndrome

Posted on 3 Apr 2018

The Forward-ME Group was addressed by Diane O’Leary, PhD. Visiting Fellow in Bioethics and Philosophy, Fondation Brocher, Hermance,Switzerland and Visiting Scholar in Neuroethics, Pellegrino Center for Clinical Bioethics, Georgetown University Medical Center, Washington DC. at its 28th March 2018 meeting. Dr O’Leary highlighted the forthcoming update of the World Health Organisation’s ‘International Classification of...

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Rituximab biomarker study update

Posted on 28 Mar 2018

Negative trial results stall the search for an immunosignature Last year, we reported on a newly funded study aimed at developing a biomarker to help predict patients who will respond to treatment with rituximab. Unfortunately, this study will not now be going ahead. Rituximab is an antibody that attacks B cells and has been used to treat some cancers and autoimmune disorders. Following promising results in patients with ME/CFS, a randomised,...

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Forward ME Group Minutes – 7th February 2018

Posted on 8 Mar 2018

Minutes of the meeting held in Residence 1, House of Lords, Wednesday 7 February 2018 starting 2pm Present: Countess of Mar (Chairman); Dr Charles Shepherd (ME Association); Dr William Weir; Bill Kent (reMEmber); Tony Crouch (25% Group and Tymes Trust); Sue Waddle and Jonathan Davies (ME Research UK); and Christine Harrison (BRAME). Apologies had been received from Janice Kent (reMEmber); Cath Ross (25% Group): Tanya Harrison (BRAME): Jane...

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