Forward ME Group – Bodily Stress Syndrome

Posted on 3 Apr 2018

The Forward-ME Group was addressed by Diane O’Leary, PhD. Visiting Fellow in Bioethics and Philosophy, Fondation Brocher, Hermance,Switzerland and Visiting Scholar in Neuroethics, Pellegrino Center for Clinical Bioethics, Georgetown University Medical Center, Washington DC. at its 28th March 2018 meeting. Dr O’Leary highlighted the forthcoming update of the World Health Organisation’s ‘International Classification of...

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Rituximab biomarker study update

Posted on 28 Mar 2018

Negative trial results stall the search for an immunosignature Last year, we reported on a newly funded study aimed at developing a biomarker to help predict patients who will respond to treatment with rituximab. Unfortunately, this study will not now be going ahead. Rituximab is an antibody that attacks B cells and has been used to treat some cancers and autoimmune disorders. Following promising results in patients with ME/CFS, a randomised,...

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Forward ME Group Minutes – 7th February 2018

Posted on 8 Mar 2018

Minutes of the meeting held in Residence 1, House of Lords, Wednesday 7 February 2018 starting 2pm Present: Countess of Mar (Chairman); Dr Charles Shepherd (ME Association); Dr William Weir; Bill Kent (reMEmber); Tony Crouch (25% Group and Tymes Trust); Sue Waddle and Jonathan Davies (ME Research UK); and Christine Harrison (BRAME). Apologies had been received from Janice Kent (reMEmber); Cath Ross (25% Group): Tanya Harrison (BRAME): Jane...

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The Big Hurt

Posted on 15 Feb 2018

Prof. Jo Nijs and colleagues in Brussels have recently published results from an ME Research UK-funded project looking at cerebral blood flow and heart rate variability, and whether they relate to pain following exercise in ME/CFS. Read more here

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Forward ME Group Minutes – 10th January 2018

Posted on 12 Feb 2018

Minutes of the meeting held  in Residence 2, House of Lords, Wednesday 10 January 2018 starting 2pm Present: Countess of Mar (Chairman); Dr Charles Shepherd (ME Association); Bill Kent (reMEmber); Tony Crouch (representing 25% Group); Jane Colby and Anita Williams (TYMES); Clare Ogden (AFME); Hannah Clifton and Dr Paul Worthley (ME Trust); and Dr Willy Weir. Apologies had been received from Sue Waddle (MERUK), Christine Harrison (BRAME) and...

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Fill Your Heart

Posted on 9 Feb 2018

Prof. Julia Newton’s team in Newcastle University has recently published a paper looking at BNP levels and cardiac dysfunction in patients with ME/CFS. These results are from a study, co-funded by ME Research UK, which builds on their previous findings of heart abnormalities in people with the illness. Read more here

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