Trustees and Honorary Presidents of ME Research UK

ME Research UK is looking for an individual with experience of medicine or relevant scientific research to join our Board of Trustees. The existing Board of six people has a diverse range of experience, skills and expertise, and we currently wish to add to the knowledge of science and medicine within the Trustee group. You are also likely to have a strong empathy with our mission to commission and fund scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS.

However, we are always looking out for people with other skills as well, so if you feel you would have something to contribute in another area, we would also be delighted to hear from you.

Also, if you know someone else who may be interested, please do pass on this information to them.

ME Research UK exists to fund biomedical research projects – as simple as that. To date, we’ve invested almost £1.6 million on studies involving many of the systems of the body. We commission research into ME/CFS (or more simply ME) which affects people of all ages and social and ethnic groups. Its symptoms are a reality of life for up to 240,000 people in the UK alone, not to mention their family and friends. Yet the illness is not properly recognised or researched – and this makes our role as the main independent funder of biomedical research in the UK and Europe particularly important.

As a charity we are governed by the Board of Charity Trustees. Our Trustees are all volunteers and they have an overall duty to develop the organisation’s aims, objectives and goals, to ensure that the charity thrives and fulfils the expectations that our supporters have of us.

Are you someone who can devote your time and talents to make research happen? To help, we have a brief role description (pdf) giving a flavour of what’s involved and of a Trustee’s duties.

If you do decide to apply, please read our Privacy Notice regarding how we will collect and process your personal data.

More details can be found in the FAQs below.

To apply, please complete this application form (pdf), and return it:

By email to applications@meresearch.org.uk,

Or by post to:

TRUSTEE APPLICATION – PRIVATE
ME Research UK
The Gateway
North Methven Street
Perth
PH1 5PP

FAQs

Who can become a Trustee?

Appointment as a Charity Trustee is open to anyone aged 16 or over whose skills, experience and qualifications are in accord with ME Research UK’s purposes namely:

  • to advance scientific knowledge by commissioning or funding research into the causes, consequences and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) or any other related illnesses, and to publish or cause to be published the results of any such research.
  • to advance public education and awareness of the causes, consequences and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) or any other related illnesses, and of the need for research into the condition, by producing printed or electronic information, funding or hosting scientific meetings, and acting as a key information resource for researchers, medical practitioners, healthcare professionals and the general public.

A person will not be eligible for appointment as a Charity Trustee if he/she is disqualified from being a charity trustee under current legislation or is an employee of the organisation.

Who appoints new Trustees?

Anyone who wishes to become a Charity Trustee must complete and sign a written application form (pdf); the application will be considered by the Board of Charity Trustees at its next meeting. The Board of Charity Trustees may decline any application but will notify each applicant promptly of their decision.

What are the duties of a Trustee?

Trustees are responsible for:

  • ensuring the organisation complies with its Constitution and pursues its objectives.
  • contributing actively to the Board of Trustees’ role in giving firm strategic direction to the organisation, setting overall policy, defining goals, and setting targets and evaluating performance against agreed targets.
  • ensuring the financial stability of the organisation.

The Office of the Scottish Charity Regulator has a useful guide on Duties of a Charity Trustee.

What skills are we looking for?

We’re looking for Trustees who have a strong empathy with our mission to commission and fund scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS. Individuals with a diverse range of experience, skills and expertise, with an interest in scientific research, and with an understanding of our work and ambitions are particularly sought.

What is the likely time commitment?

The Trustees hold four meetings per year which are normally held at our HQ in Perth (which is disabled access friendly). Trustees may have additional ad hoc meetings, usually by telephone, as needs arise. Meetings are held in person but attendance by Skype is possible.

Is the role paid?

Trustees are volunteers and cannot be paid. Reasonable travel expenses to meetings will be reimbursed.