ME Research UK exists to fund biomedical research projects – as simple as that. To date, we’ve invested over £1.5 million on 45 distinct studies involving many of the systems of the body. We commission research into ME/CFS (or more simply ME) which affects people of all ages and social and ethnic groups. Its symptoms are a reality of life for up to 240,000 people in the UK alone, not to mention their family and friends. Yet the illness is not properly recognised or researched – and this makes our role as the main independent funder of biomedical research in the UK and Europe particularly important.

As a charity we are governed by a Board of Charity Trustees. Our Trustees are all volunteers and they have an overall duty to develop the organisation’s aims, objectives and goals, to ensure that the charity thrives and fulfils the expectations which our supporters have of us.

The most effective Boards are ones which benefit from individuals from a diverse range of backgrounds, experiences and skill sets. Our Trustees are looking for people who can devote their time and talents to make research happen. To help, we have a brief role description giving a flavour of what’s involved and of a Trustee’s duties.

We are looking for individuals who have a strong empathy with our mission to commission and fund scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS. Those with a diverse range of experience, skills and expertise, with an interest in scientific research, and with an understanding of our work and ambitions are particularly sought.

More details can be found in the FAQs below.

To apply, please complete this simple application form, and return it by post to:

TRUSTEE APPLICATION – PRIVATE
ME Research UK
The Gateway
North Methven Street
Perth
PH1 5PP

or by e-mail to: meruk@pkavs.org.uk

FAQs

For more information, click on the questions below.


Who can become a Trustee?

Appointment as a Charity Trustee is open to anyone aged 16 or over whose skills, experience and qualifications are in accord with ME Research UK’s purposes namely:

  • to advance scientific knowledge by commissioning or funding research into the causes, consequences and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) or any other related illnesses, and to publish or cause to be published the results of any such research.
  • to advance public education and awareness of the causes, consequences and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) or any other related illnesses, and of the need for research into the condition, by producing printed or electronic information, funding or hosting scientific meetings, and acting as a key information resource for researchers, medical practitioners, healthcare professionals and the general public.

A person will not be eligible for appointment as a Charity Trustee if he/she is disqualified from being a charity trustee under current legislation or is an employee of the organisation.


Who appoints new Trustees?

Anyone who wishes to become a Charity Trustee must complete and sign a written application form; the application will be considered by the Board of Charity Trustees at its next meeting. The Board of Charity Trustees may decline any application but will notify each applicant promptly of their decision.


What are the duties of a Trustee?

Trustees are responsible for:

  • ensuring the organisation complies with its Constitution and pursues its objectives.
  • contributing actively to the Board of Trustees’ role in giving firm strategic direction to the organisation, setting overall policy, defining goals, and setting targets and evaluating performance against agreed targets.
  • ensuring the financial stability of the organisation.

The Office of the Scottish Charity Regulator has a useful guide on Duties of a Charity Trustee.


What skills are we looking for?

We’re looking for Trustees who have a strong empathy with our mission to commission and fund scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS. Individuals with a diverse range of experience, skills and expertise, with an interest in scientific research, and with an understanding of our work and ambitions are particularly sought.


What is the likely time commitment?

The Trustees hold four meetings per year which are normally held at our HQ in Perth (which is disabled access friendly). Trustees may have additional ad hoc meetings, usually by telephone, as needs arise. Meetings are held in person but attendance by Skype is possible.


Is the role paid?

Trustees are volunteers and cannot be paid. Reasonable travel expenses to meetings will be reimbursed.